TSW. Trichotillomania. Books. Life.

Monday, 6 June 2016

THREE YEARS STEROID FREE!


*My month 36 update can be found here*

I apologise for the overuse of capital letters in my title but I can't contain my excitement as today marks exactly 3 years since I started Topical Steroid Withdrawal. On the evening of Thursday 6th June 2013 my life changed forever and what an extraordinary three years it's been. Since last August I have been living my life normally and it still feels like a dream. It's like that moment in The Wizard of Oz when Dorothy steps out into the land of Oz and everything is suddenly in vivid, beautiful technicolour after 26/27 months spent in black and white. I don't need to go into how hard this process is - it takes everything from you both emotionally and physically but it also puts you back together again so you end up a stronger, happier, healthier version of you. On my two year TSW anniversary things were very different. From the beginning of my withdrawal I knew it would take at least two years to get better but when that second year marker came around, the only word I can give you for how I felt was disappointed. I looked at my hands, face and left ankle that I couldn't walk on and just felt down. I would never have gone back to steroid creams as they had caused all this in the first place but I worried that I would be stuck in this stagnant, crappy phase forever and this was my new skin that I just had to get used to. Only a couple of months later things completely changed. Suddenly my skin was wonderful. It is hard to put into words just how grateful I am for this process and hearing about TSA as it's changed me. I am a completely different person to the girl I was three years ago and I would do it again in a heartbeat if it meant I would be in the place I am today.

Topical Steroid Withdrawal has been hands down the best thing that has ever happened to me. Deciding to go through TSW is a brave, scary decision that should be yours alone to make. When I started there were very few people going through it but now there is a wonderful ever-growing community of skin warriors and I feel immensely lucky to be part of such an exceptional group of individuals. I think we are joined by what we have all gone through and one day hopefully others won't have to suffer as we have. I hope in the next year of my withdrawal we see the medical community and pharmaceutical companies taking some responsibility for their actions and also get some recognition for the condition topical steroid addiction itself. It is very real.

I think I have said enough so I'll leave you with these two very different pictures. Photo on the left was taken on Monday 1st July 2013 (I can't believe it was me). Photo on the right taken this morning - as always, no filters or face make-up.



Never give up.
Cara xxx
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Sunday, 5 June 2016

My Topical Steroid Withdrawal update – Month 36


Tomorrow is a pretty huge landmark for me as it will mark 3 years since I started Topical Steroid Withdrawal. I will save all the words about that for a special post tomorrow so for now, here are a few things I wanted to mention about the last month:

  • On 13th & 14th May 2016 I had sore lips - they didn't look sore, just felt that way. I was also dealing with a slight cold so I am wondering if there was a correlation between to two...? Who knows!
  • From Friday 20th May 2016 I had lumpy, irritated skin around my chest and neck area and a small faint rash on my neck (was impossible to take a photo of it as it was so light!). Rash went after a while though.
  • On Friday 27th May 2016 I got a small rash on my left hand but it was gone by the 30th.
  • On 28th & 29th May 2016 I started getting rough, dry skin on my face. Nothing showed really, just how it felt. By 1st June it was pretty much back to normal.
  • On 3rd June 2016 my face felt a little tight but nothing really showed apart from the odd patch of dry skin that my camera couldn't pick up on. The rash on my left hand came back up too. I attribute both issues to a very long work day the day before, cleaning and washing my hands too much and not looking after myself. The anti-TSW beauty routine basically. Today (5th June) they have nearly gone again.

Until tomorrow,
Cara xxx








The following two photos are my attempt at capturing the small rash on my neck - the photo on the right taken a few days later when the skin calmed down and was only a little dry and wrinkly before it quickly returned to normal.











The next two photos were taken yesterday on Saturday 4th June 2016 which was the day me and my mum chose to celebrate my 3 year TSW anniversary. We had a wonderful day, starting with a special lunch at The Ivy Kensington Brasserie where my mum gave me this wonderful necklace to symbolise, in part, the incredible journey we've been on. I say we, as she was my carer and looked after me every single day of my withdrawal and I definitely wouldn't have been able to do it without her. Now that I am better we treasure every day we spend together.



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