TSW. Trichotillomania. Books. Life.

The TSW Database: BOOKS BOOKS BOOKS



I have wanted to put this little post together for a while now because ever since my book, Curing my Incurable Eczema, was released in December 2017, many more beautiful books on TSW have joined the ever-expanding family, and I wanted to find a home to put them all. As a result, I have added another section to my TSW database. 

I hope you find the post useful and the books help you to remember that you're not alone.


Topical Steroid Side Effects by Suhein Beck

Published as an ebook in July 2019, Topical Steroid Side Effects is both factual and fascinating, and a must-read for anyone within the skin community and beyond. I learned so much about the drugs I used for so long – exactly what they are, how they work, their side effects, and so much more. The author, Suhein (@suheinbeck), is the founder of ELAJ Natural Skincare (@elajnaturally) and is passionate about making a difference and spreading awareness for our iatrogenic condition. 

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)


The Shape of Skin by Ruth Holroyd

In late 2020,  I had the absolute honour of reading a draft of Ruth's amazing poetry book, The Shape of Skin, which was published as an ebook and paperback in March 2021. This collection will resonate with those who know how it feels to live with a chronic skin condition or something as life-altering as TSW.

Ruth’s poems are written as if they are in your skin. They are heartbreaking and raw – sometimes abstract, sometimes lyrical, but always very real.

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


This Isn't Eczema by Claire Oxenham and Charlotte Oxenham

Published in May 2021, This Isn't Eczema, is a collaboration between two sisters: Claire (@theendlessitch), who is currently going through TSW, and Charlotte (@artby_charl), who has done all the illustrations for it. They have teamed up to create a very useful guidebook on the mental and physical symptoms you will more than likely experience when you go through TSW. 

I actually think this would be a wonderful thing for families to read together – either parents telling their children what they are going through or to make children going through TSW feel less scared.

I also think that with the help of the illustrations, it makes the message very clear and shows just how much we have to go through as a result of this completely preventable drug withdrawal.

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


Iron Skin: A Memoir by Brendan John Lee

Published in January 2022, Iron Skin, is a memoir about Brendan's experience of TSW and the extraordinary physical goals he absolutely smashes in the process. What was so refreshing about Brendan’s experience of TSW is that his memoir, written during the first year or so of withdrawal, was only partly to do with TSW whilst the running and fitness became the true focus. Even though Brendan (@brenontheroad) and I did have (very) different withdrawals, we both share the fact that we essentially found passions through TSW: Brendan, fitness and running (it’s honestly extraordinary) and myself, writing and reading (from my one true love, the sofa). 

Brendan is an exceptionally inspiring guy and this book made me think that anything is possible.

The opening chapters are reflections of Brendan’s experience with eczema which broke my heart and perfectly summed up how it feels growing up with a skin condition. 

One word of warning: its content at the beginning is graphic and might be triggering for some, especially when he talks about his experience during the early stages of TSW, but I thought it was such a raw and important account, that it’s almost like a medical journal, too.

This book is a lesson in what we are capable of, even whilst going through something like TSW.

The book also talks about using the Dr Sato method, which is essentially, amongst other things, No Moisture Treatment (limiting water intake from food and drink and also no moisturisers). I learned a lot about a process I only vaguely understood before, and whilst I couldn’t have limited my water intake, I do have so much respect for Dr Sato as a medical professional and everything he has done, and continues to do, to help people through TSW.

Lastly, and most importantly, Brendan is an excellent writer who has written an engaging and emotive book that is going offer hope and inspiration to so many people.

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)

Links to buy the hardcover:

Amazon UK (here)

Amazon US (here)


To Eczema, with Love: Eczema, Topical Steroid Withdrawal, and a Life Beyond by Kelly Barta

Published in May 2022, To Eczema, with Love is written by former ITSAN president, Kelly Barta. I haven't read it yet, but I plan on rectifying this as soon as I can. As I cannot offer a personal review, below is the blurb taken from Amazon: 

Anyone living with eczema wants it to go away….forever! But what if what you are treating your skin with is actually prolonging or worsening the condition? What if it is leading to something even more devastating?

Dealing with eczema is frustrating, even exasperating. In a world where conflicting advice abounds and an overwhelming amount of treatments are touted as cure-alls, how does one know what will work for them or their child without going broke or losing their minds?

As a life-long eczema patient and topical steroid withdrawal survivor, author Kelly Barta tells her own honest and painful personal story, guiding readers to discover a hands-on understanding of eczema, topical steroid withdrawal (TSW) and their treatments. With the knowledge she acquired in seven years of non-profit work with eczema stakeholders, Kelly will help you navigate through the noise and find clarity in your own eczema or TSW journey.

In To Eczema, with Love, you will find invaluable information on:

  • Tips and tricks for managing eczema
  • The science and driving factors of the disease
  • Current eczema treatments – the good, the bad and the ugly
  • Advice for caregivers
  • What we know about TSW
  • Addressing mental health and chronic pain
  • How to live a life free from being controlled by skin!

Walk along with Kelly in her journey through eczema and topical steroid withdrawal, and join her in not only reaching the other side, but entering into a life comfortable in the skin you are in. 

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


Scratching the Surface by Allyson Steedman

Published in October 2022, Scratching the Surface is a memoir written by Allyson Steedman about her experience of going through topical steroid withdrawal and so much more. Again, as I have not read this book, I cannot offer my own review so instead here is the blurb taken from Amazon:

There is no magic needed to create the perfect life. We have no way of knowing what our future holds for us, but we have the power within ourselves to help shape it and curate it through our thoughts, emotions and desires.

For her whole life, Allyson lived with chronic eczema. At times severe, she was told the condition was incurable and doctors prescribed topical steroid creams to help manage the outbreaks. She learned to live with it. Now, well into her thirties, married and with a daughter of her own, life was busy and full of energy and seemed to be moving in the right direction. Until she stopped using the creams. Plunged into Topical Steroid Withdrawal (TSW), she faced years of debilitating effects that left her with increased loss of physical function, traumatic physical and mental pain and a greatly diminished quality of life. But through all the pain, a resonating within her of an undeniable truth emerged; that physical healing was only one part of the equation. That to truly heal, we must look deeply within ourselves to find the connection between our mind, body and spirit. Through Allyson's journey, we can find a link to our own spirit and answer its call to live more authentically and with a full heart.

Scratching the Surface challenges all of us to look beyond our physical limitations and current situations to find a deeper connection to ourselves and who we can truly be. It encourages us to shift our thoughts, shed our fears and equip our minds for a different outlook and to believe in our own intrinsic value.

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


... and finally, I wanted to share three other authors who might not have written books about TSW, but they are part of the TSW family. 


The Sight of You by Holly Miller 

I write this as an actual fan of the author – it also just so happens that Holly (@byhollymiller) is currently going through TSW. I read her book, The Sight of You, published by Hodder & Stoughton in June 2020, and completely fell in love with it.

The Sight of You is essentially the love story of Joel and Callie – two people who meet and fall in love, but a vision Joel has threatens to destroy everything. 

Holly just writes so beautifully. Reading this book was almost like I was reading a beautiful painting. When I was going through TSW, I gravitated towards positive books, and whilst this definitely has moments of sadness, it's something I would have loved to have read through TSW because its message is definitely about finding the beauty in life and holding on to the precious now and how incredible life is. 

Wonderfully, Holly has also just released her latest book, What Might Have Been, which is at the top of my to-read list!

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


The Peculiar Disappearance of Jillian Sanchez by Kelley Toews

I share this book without having read it, but I am rectifying that this weekend – it was doing this post that made me remember that I hadn't read it yet! Instead, I will share the blurb, which again makes me pleased I am doing this post because I cannot wait to read it:

When Jillian’s mysterious cuts and bruises begin to worsen and spread, she must leave her life behind to follow a strange talking shadow. It leads her over land, sea, and sky in pursuit of uncovering a secret that will save her from an untimely death.

Kelley (@toewskelley) wrote this urban fantasy novella whilst housebound during TSW in order to help her process what she was going through. 

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


Scrapbook of an Unfound Songstress by Vicky Nolan

This is next on my to read list and I can't wait. Scrapbook of an Unfound Songstress is a memoir written by singer songwriter, Vicky Nolan. Like others in this list, as I haven't read it yet, here is the blurb taken from Amazon:

Stop, Look, Listen with your heart?

Written by singer songwriter Vicky Nolan, Scrapbook of an Un
found Songstress is a unique true story about female empowerment, musical talent and self-discovery. This book will be great for fans of Anna Todd, Taylor Swift and the new generation of YA.

You will love Vicky and her remarkable story:

Imagine, you're a 15-year-old dreaming of becoming a pop star, and then one day you get your lucky break - you get a record deal with Polydor records - they send you to Copenhagen to make pop music - to make you a pop star. Your future is looking brighter than ever, or you thought so – until the High Court writ hits your door mat! – you split with your management and they have decided to sue you, break you, destroy you. 

No, this isn’t the promised dream, this is a nightmare, this wasn't suppose to happen! and all while still at school at the sweet age of sixteen.

An intriguing Journey

The scrapbook of stories takes you on a whirlwind of personal experiences. Read about Hollywood, London town, the glamour and the music, the drama of the court and trial, and everything in between. Everything is at stake.

How does the trial end?

We always talk about 'making it' and fulfilling your dreams. The question is, what if you don't? What happens next? Ultimately this book speaks about life and family; it's hopes and disappointments, It's ups and downs. Scrapbook of an Unfound Songstress is in some way a story that speaks to us all, because in the end, the best stories are always true.

Links to buy the ebook:

Amazon UK (here)

Amazon US (here)

Links to buy the paperback:

Amazon UK (here)

Amazon US (here)


TSW is as diverse as all the symptoms we face and there is room for a library's worth of books on this iatrogenic condition that is very close to our hearts, and I cannot wait to read all the future books about  TSW that have shaped and inspired the authors who wrote them. 

Until next time

Cara x

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For Things to Potentially Avoid During TSW, click (here).

The TSW Database: Things to potentially avoid during TSW



This is something I have wanted to do ever since I found out that liquorice acts like a natural steroid in the body. Then recently, after hearing about more things that could end up being problematic for anyone going through TSW, I knew the time had finally come to put everything down in a proper post as part of my TSW database because I feel it is important to share them with you so you're not in the dark, like I was until recently. 

Please note that this is not intended as medical advice (because I'm certainly not a medical professional), and merely some things I would like to have known about during TSW. On the flip side, some have actually said that a few of the things I have mentioned have helped their skin, like Ashwaganda and liquorice. Regardless, I think it's important to share them anyway then leave it up to you to make an informed decision, weighing up the pros and cons.

In this post I won't be discussing food intolerances like gluten, dairy or sugar, or things like natural oils etc. because it's too subjective – and besides, I think they've already been discussed enough, and this post is already too big as it is! If you would like me to do a proper post on those things, I'd be very happy to do so. 

I would also like to say that I think a lot of people during TSW blame triggers and food when it is simply just TSW skin being unpredictable. Not in all cases, but I think it is important to mention as I think most of you will probably know by now that I believe time is the only true healer and that your skin gets better no matter what you eat or put on your skin. 

Finally, I want to end by saying that I would hate this post to scare you. I am simply sharing it to put it out there so you can be mindful of them. I am not going to go into too much detail or share lots of medical information as I am not qualified to do so.

I will be adding to this list over time, so please do email me (tswcara @ hotmail dot com) or comment below if you know of anything that might be important to add.


Liquorice

I first heard about the link between liquorice and TSW a few years ago when I noticed some people mentioning it in the Facebook groups. Then, months later, others started to message me asking if there was any truth to it, and I'd always say that I didn't have a clue, because I didn't. It wasn't until last December when I received a message from someone who had experienced a reaction firsthand and wanted to share their experience that I really sat up and paid attention because up until then it had only been hearsay. They told me that they had switched from drinking red wine (because they flared every time they'd had it) to gin. They had some Gordon's and Whitby brand gin and said that they thought they had found some kind of miracle cure for TSW because their skin was amazing shortly after having it, until they realised it was because those particular gins contained liquorice. In layman's terms, liquorice acts like a steroid in the body and essentially assists the the adrenals by stopping the breakdown of cortisone ... sound familiar? 

Most people have liquorice in teas or as part of supplements like Brittany Stephens (@britt.anystephens) did, who took a supplement which contained liquorice that was recommended to her by her naturopath for gut healing. She kindly gave me permission to share photos of her skin before, during and after taking it. 

In July, when Brittany's rashes were spreading during TSW.
In September when her legs started to clear up.
In December, one week on the new supplement which contained liquorice.
Brittany said her skin was red, rashy with a burning itch, but that she also felt cold inside.

Two weeks later after cutting out the liquorice. 

Even though I have drunk gin since I've recovered and not experienced any issues, this is something I will now avoid within an inch of my life because I simply don't want to take the chance. Although saying that, I have received countless comments saying that liquorice has been invaluable during their own withdrawal. 

So the moral of this story, like everything, is to do your own research and make sure this is something you want to risk. Some benefit from it whereas some really don't. 

Please note that it can also be called Glycyrrhiza.  

I find it sad that I never knew about the amazing properties of liquorice when I had eczema and my skin wasn't compromised by steroids. That's how I look on my skin now. Some options have been taken away from me because I was unfortunately not educated on the potential dangers of steroids. Why they never recommend liquorice when it is proven to have such incredible anti-inflammatory benefits, I'll never know ... oh wait, yes I do ($$$$$). 

To end this section on a more positive note, if you're a gin drinker and all this talk has left you feeling a little disappointed, fear not, as apparently the gin brand Hendrinks does not contain liquorice. Cheers to that. 


Ashwaganda

Just like liquorice, this has divided the community, with some saying it has been an integral part of their healing, whilst others have suffered badly from taking it. I'd never heard about Ashwaganda until very recently when I started to notice a lot of people discussing whether it should be used at all during TSW. Essentially, Ashwanganda is an Ayurvedic herb with wide-ranging health benefits which mostly come from its withanolides (naturally occurring steroids). Crazy fact: Ashwaganda's steroid properties are actually much higher than hydrocortisone. 

In my non-medical opinion, try to remember that our skin during TSW is volatile, it is not eczema and instead compromised by steroids, therefore it will see anything that acts like a steroid in the body and maybe latch onto that. Again, only my opinion, and I just want you to be careful whatever you choose to do.

I think there is a common misconception that when something is natural or a herb it's safe to use. That is not the case, and because things like Ashwaganda can have powerful healing properties, you need to ensure that you seek medical advice as it can mess around with some prescription medication (this is what I read from multiple sources online). 

Again, do a lot of research and remember that this is YOUR decision and no one else's.


Propylene Glycol (PG)

This is again another thing that I'd never heard of until a few weeks ago (literally the only thing I appear to know about our condition is to stop using steroids and you'll get better eventually ... it's quite embarrassing actually) when the lovely @tswmarisa shared on Instagram that she'd recently discovered that she had an allergy to Propylene Glycol. After a long patch of clear skin, at the start of the pandemic, Marisa found herself flaring again. At first, she couldn't understand why and thought it might just be a regular TSW flare, until she figured out that she did indeed have a sensitivity to PG, and about 5 days after removing all PG products, her hands cleared up. Her face also recovered soon after that with only her neck playing catchup. Another thing to mention is that Marisa wasn't sensitive to PG before TSW, and unfortunately it is something that she believes is damage from steroids.  

Apparently PG is a very common eczema trigger which was even voted Allergen of the Year in 2018. Regarded 'safe', PG is used in countless products and foods - and, very topically, hand sanitisers. 

Since sharing Marisa's post, I have received countless messages from others saying they have also experienced a bad reaction to the chemical. If you are concerned that you may have an allergy to PG, it is something you can get tested for. Apparently the most common areas to get a reaction are the scalp, face, neck and hands.

Other names for PG are 1,2-dihydroxypropane, 1,2-propanediol, methyl glycol, and trimethyl glycol.

I have also been told that PG might be in some of the covid vaccines so best to double check if you are concerned. 

Crazily, I've just found out that PG can also be found in STEROID CREAMS. 

Used with kind permission of @tswmarisa (here). Top photo is from year one of TSW and the bottom photo is Marisa twelve weeks after being PG free and two weeks after introducing PG free makeup. Apparently before removing PG, her face had been in and out of flares since the start of the pandemic. 





















Nightshades

The only food-related one I will share because pretty much everyone I have ever spoken to has reacted to something on the nightshade list during TSW. Even I noticed a reaction to a nightshade (raw tomatoes), although very mildly, and that, along with strawberries, was the only kind of reaction I experienced to food during TSW. 

I have known about nightshades being a trigger for skin ever since my good old eczema days as they can be an issue for people with autoimmune diseases due to their lectin, saponin and capsaicin content.

The full list of nightshades are:

Ashwagandha (oh hello again...), Bush tomato, Cape gooseberry, Cocona, Eggplant, Garden huckleberry, Goji berries, Kutjera, Naranjillas, Paprika, Pepinos, Peppers (including bell peppers and hot peppers like jalapeños and chili peppers), Potatoes (but not sweet potatoes or yams), Tamarillos, Tomatillos and Tomatoes.

As an FYI, I no longer have any kind of sensitivity to raw tomatoes, or any food, but I do think it's a food group to be mindful of when going through TSW because a reaction to foods in that group seems to be so so common. 


Alcohol

A question I get asked a lot is whether you can drink during TSW. I never did. I'm mostly a social drinker and during TSW I wasn't doing a lot of that so...

When I was asking what items I should include on this list, a fair few people mentioned alcohol, although the kinds of alcohol that are better than others seem to vary, and so do the reasons behind it. 

From what I could make out, for the most part, it appears to be the sulphites in some of them that are the main flare culprit.

Sulphites are essentially compounds that occur naturally in grapes and hops which are used to make beer and wine as they stop bacteria from growing. Most wines and beers have extra sulphites added for that reason. 

Beer, brown liquor and ciders are high in sulphites (and also high in histamines which some also experience problems with). If you are looking to avoid sulphites, best to stick with clear spirits and natural wines. 

Alcohol is also known to dry out the skin and dilate the blood vessels so with people prone to eczema and TSW, it makes a lot of sense that it would make our skin redder, more irritated and uncomfortable. 

But like everything else on this list, some don't experience a problem with alcohol at all. I think like most things during TSW, it's about trial and error - and of course drinking responsibly and being of legal age to do so :)

 

Stress & Anxiety

I feel like this is a given, but I thought I'd mention it anyway. 

I think the best thing you can do for yourself during TSW is to do whatever you can to take away stress and be kind to yourself. For me, that meant coming off social media, watching and seeing only positive things and trying not to overthink the crazy situation I currently found myself in. I sound very flippant saying this because I am both a very anxious person and overthink EVERYTHING, so I know this isn't an easy thing to do, but during TSW I was probably kinder to myself than at any other time in my life. I didn't feel guilty for eating bad foods or worry about the life I was missing out on, I just took it day by day. I cannot begin to tell you how many messages I have received and posts I've read from others in the community who beat themselves up for slipping on a specific diet or ask when they'll get better then overanalyse every little thing their skin is doing. When it comes to food guilt, I say this a lot, but you are going to do more damage to your skin worrying about the food you've eaten, than any damage the food could ever do in the first place.

In every area of life, stress is bad and its effect on the body can be great. It doesn't help that the stress and anxiety through TSW is like a vicious cycle so the idea of kindly telling your mind not to feel it is easier said than done.

If you are looking for ways to destress, I would definitely recommend limiting social media/phone time and trying to distract yourself by only focusing on positive things. Doing all this during TSW was a conscious decision and I really did benefit from making these changes. I will also be eternally grateful to Josh in Australia. One of the most positive and upbeat people in this community who shared videos during his withdrawal (here) which ended up having such a great impact on me. There were still some very dark times during TSW, especially in the second year when I really started to question whether I'd ever get better, but for the most part, these things truly saved me from going under - because you've got to remember that TSW is a trauma that NO ONE should ever have to go through. 

I never tried it through TSW, but maybe consider giving meditation a go - although saying that, with the pretty much constant irritation during TSW, I can't imagine it would be easy to be mindful and not think about your skin. Definitely worth a try though. There are many great apps you can use, but I usually just search for a 15 minute mindfulness meditation on YouTube. *This* is one of my favourites. 


Other known triggers and irritants:
~ Salicylate Intolerance
~ Benzyl alcohol
~ Tenside in laundry detergents
~ Harsh cleaning products, especially those containing bleach
~ Formaldehyde
~ I'm going to mention the weather, because most will notice a change in their skin during the colder months in particular, but seeing as it's not something any of us can control during TSW, I'll leave it there!


Just like at the end of an episode of Jerry Springer, I want to add a final thought. Why when we go to the doctors about our eczema do they not ever mention any of this; known triggers or other more natural options to consider first? In a doctor's appointment we are instead basically given two options: steroids or immunosuppressants, along with the flawed advice to moisturise moisturise moisturise. I truly pray that the next generation who will hopefully know about the potential dangers of these drugs will know that there are other options, other things they can try first. So much of eczema is an enigma, and I'd love it if they'd just stop throwing rubbish at us and maybe consider why we have it, then look for an answer and not a mask. 

To end on a positive note, I wanted to say that it does get better. It's been over five years since I recovered and TSW remains the best thing I've ever done for myself. Don't suffer in silence and know that you are not alone.

Cara x


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The TSW Database: The Media



It's funny, when you think something is all done and dusted, then realise there is still yet more to cover. This weekend it hit me that I had completely forgotten to include within my database all the stories that have been featured in the media on our condition.

This section of the database will mostly focus on all the articles currently out there on topical steroid addiction and topical steroid withdrawal because, apart from a couple of TV features and a podcast episode, there isn't much, and unfortunately the TV features so far have not offered an accurate representation of our condition.

With the stories in news outlets, I thought I would divide them by person instead of by publication or website because usually, once a story is picked up by one outlet, others follow suit. I have also shared any Instagram accounts connected to specific people's stories.

I hope you find it useful, and just like every other section of this database, I will be updating it as and when, but if I have missed any, please do let me know.

Cara x


Stories in news outlets

My story
(@carasnextchapter)
https://www.dailymail.co.uk/health/article-3395533/My-skin-covered-scales-shedding-house-Eczema-sufferer-develops-horrific-reaction-stops-using-steroid-cream.html

https://www.express.co.uk/life-style/life/633876/Extreme-eczema-red-raw-oozing-skin-Cara-Ward

https://www.mirror.co.uk/news/uk-news/woman-shed-whole-bodys-worth-7163601

https://www.cosmopolitan.com/lifestyle/news/a52060/cara-ward-topical-steroid-withdrawal/


Briana Banos
(@blackvelvetink & @preventable_doc)
https://www.dailymail.co.uk/health/article-3596321/Eczema-patient-filled-two-jars-dead-SKIN-suffering-severe-reaction-stopped-using-topical-steroid-creams.html

https://www.mirror.co.uk/news/world-news/human-scab-woman-shed-enough-7994743

https://metro.co.uk/2016/05/18/woman-fills-jars-with-facial-skin-after-she-stops-using-acne-cream-5889873/


Laura Stageman 
(@stagey)
https://www.dailymail.co.uk/health/article-3350782/Eczema-patient-spent-20-hours-day-bath-soothe-flaking-skin-suffering-severe-reaction-stopped-using-steroid-creams.html

https://www.mirror.co.uk/news/real-life-stories/my-skin-started-falling-off-6973394

https://www.catersnews.com/stories/real-people/stunning-woman-left-shedding-like-a-snake-from-rare-condition/


Jonathan Rowe
(@tsw_jr)
https://www.dailymail.co.uk/health/article-7651067/Eczema-stricken-man-reveals-shocking-transformation-pictures-ditching-steroid-medication.htmlAlice

https://www.thesun.co.uk/fabulous/10282097/eczema-depriving-skin-moisture-steroids-reaction/

https://metro.co.uk/2019/11/06/man-struggled-eczema-face-years-treating-condition-drying-skin-11049982/

https://www.ladbible.com/news/uk-man-with-eczema-shows-transformation-after-ditching-steroid-medication-20191105

https://www.unilad.co.uk/health/man-with-severe-eczema-shares-amazing-transformation-after-ditching-steroid-medication/


Alice Burleigh
(@tsw_alice)
https://www.dailymail.co.uk/health/article-7763187/Shocking-pictures-eczema-stricken-student-steroid-withdrawal.html

https://www.thesun.co.uk/fabulous/10496945/slept-mittens-clawing-skin-addiction-eczema-cream/

https://www.ladbible.com/news/uk-students-eczema-clears-after-she-gives-up-steroids-20191206

https://www.foxnews.com/health/woman-severe-eczema-steroid-cream

https://heraldpublicist.com/shocking-before-and-after-pictures-of-eczema-stricken-student-with-steroid-withdrawal/


Hayley Woolcock
(@tswdailywithhayley)
https://www.dailymail.co.uk/femail/article-7578989/Perth-woman-eczema-claims-topical-steroids-caused-hair-FALL-left-skin-blistering.html

https://whatsnew2day.com/a-perth-woman-with-eczema-claims-that-topical-steroids-caused-her-hair-to-fall-and-the-skin-to-show-blisters


Abigail Lowe




Nicola Jones






Lucy Mcdermott



Irene Tempelaars
(@itchy_irene)
https://www.dailymail.co.uk/health/article-7075663/Woman-left-horrific-steroid-withdrawal-syndrome-doctors-prescribed-creams-20-years.html

https://www.thesun.co.uk/fabulous/9145430/eczema-woman-itchy-flaky-skin-ditching-steroid-cream/


Louise King
(@louigi.skin)
https://www.dailymail.co.uk/health/article-6755475/Eczema-sufferer-lizard-skin-intimate-boyfriend-ditching-steroid-cream.html

https://www.thesun.co.uk/fabulous/8515501/eczema-lizard-addictive-steroids-killed-sex-life/

https://metro.co.uk/2019/02/28/woman-with-eczema-left-with-lizard-skin-after-deciding-to-stop-using-steroid-cream-8776682/

https://www.portsmouth.co.uk/health/hampshire-woman-left-looking-like-a-lizard-after-weaning-herself-off-steroid-creams-used-to-treat-eczema-1-8829501


Harriet Hammond
(@tswharriet)
https://www.dailymail.co.uk/health/article-6741981/Charity-worker-withdrawal-eczema-creams-admits-intimate-boyfriend.html

https://www.thesun.co.uk/fabulous/8503013/eczema-reaction-skin-peeling-ruined-sex-life/

https://www.thescottishsun.co.uk/fabulous/3922685/eczema-cream-skin-cream-sex-life-ruined/

https://metro.co.uk/2019/02/25/womans-skin-fell-off-broke-huge-blisters-became-addicted-eczema-cream-8734845/


Laurie Williams
(@laurieskinstory)
https://www.dailymail.co.uk/health/article-6829785/Eczema-sufferer-endures-flaking-skin-ditching-steroid-creams.html

https://www.thesun.co.uk/fabulous/8679597/eczema-skin-shed-flakes-steroid-cream/

https://www.mirror.co.uk/news/uk-news/woman-stops-using-steroid-cream-14168079

https://metro.co.uk/2019/03/21/woman-says-her-severe-eczema-caused-her-skin-to-flake-off-on-train-passengers-8960188/


Holly Broome
(@tsw_hollybee)
https://www.dailymail.co.uk/health/article-7676359/Eczema-stricken-woman-makes-recovery-ditching-steroid-creams-showering-WEEK.html

https://www.thesun.co.uk/fabulous/10330975/cure-agonising-eczema-stop-treatment-withdrawal/

https://www.unilad.co.uk/health/woman-with-extreme-eczema-makes-incredible-recovery-after-ditching-steroid-cream-and-showers/

https://www.tyla.com/healthy/real-life-eczema-cure-topical-steroid-withdrawal-addiction-no-moisture-treatment-20191113


Zainab Danjuma
(@tsw_beezeebuzz)
https://www.dailymail.co.uk/health/article-6035163/Eczema-suffer-reveals-photo-diary-painful-10-month-journey-ween-topical-steroids.html

https://www.getthegloss.com/article/eczema-sufferer-on-topical-steroid-withdrawal

https://www.stylist.co.uk/beauty/skincare/eczema-topical-steroid-withdrawal/793373


Keri Campbell












Eve


Daisy Malin
(@daisymalin_skin)








Stephanie Davis
(@ stephaniedavis88)






Kristi Chun







Georgianna Thorne
(@georgit24)
https://www.dailymail.co.uk/femail/article-9740347/Woman-reveals-steroid-creams-prescribed-eczema-left-skin-oozing-burnt-cracked.html

Stephanie Shaw
(@tswsteph)
https://www.dailymail.co.uk/health/article-6085787/Eczema-sufferer-addicted-steroid-creams-reveals-suicidal.html

https://www.mirror.co.uk/news/uk-news/eczema-sufferers-hell-addiction-prescribed-13118634

https://www.thescottishsun.co.uk/news/3100216/eczema-sufferers-agony-after-prescribed-steroid-cream-addiction-leaves-her-bedridden-and-jobless/


Frances Wang
(@franceswangtv)
https://www.dailymail.co.uk/health/article-7656791/CBS-anchor-returns-work-treating-skin-condition-left-painful-acne-rashes.html

https://www.dailymail.co.uk/health/article-7521905/CBS-anchor-reveals-treating-eczema-steroid-cream-caused-develop-new-skin-condition.html

https://www.dailymail.co.uk/video/health/video-2043496/Video-Anchor-Frances-Wang-shows-eczema-face-covered-uncovered.html


https://www.today.com/health/tv-anchor-frances-wang-opens-about-painful-skin-condition-t163638

https://people.com/health/cbs-news-frances-wang-dealing-with-painful-skin-condition-im-very-self-conscious-about-it/

https://people.com/health/cbs-miamis-frances-wang-says-skin-is-healing-after-taking-time-off/

https://www.msn.com/en-us/health/voices/what-its-like-to-have-bad-skin-and-work-on-tv/ar-BBWqnP1

https://www.yahoo.com/lifestyle/reporter-returns-to-tv-after-battling-severe-skin-condition-there-is-beauty-in-vulnerability-203225547.html

https://www.health.com/condition/skin-conditions/frances-wang-skin-condition

https://www.womenshealthmag.com/health/a29308180/frances-wang-cbs-face-rash-perioral-dermatitis/

https://www.miamiherald.com/news/health-care/article236204043.html

http://breakingnews.ws/my-face-blew-up-cbs-news-anchor-frances-wang-reveals-how-treating-her-eczema-with-steroid-cream-left-her-with-painful-acne-and-rashes.html

https://www.adweek.com/tvspy/miami-anchor-returns-to-tv-after-taking-time-off-to-heal-skin-condition/217709/

https://miami.cbslocal.com/2019/11/22/cbs4-frances-wang-skin-condition-awareness-helping-others-perioral-dermatitis/


Aramide


Rhianna Burns



Megan Chrome









Nicola Barton (@nicola_skin)


Kathryn Hinton


Julianna Permitin


Jake Killeen





Scarlet September




Lyndsie Wright
https://www.ladbible.com/news/news-woman-left-smelling-like-old-pennies-after-skin-cream-disaster-20211024

https://www.mirror.co.uk/news/us-news/woman-26-left-smelling-like-25285426


Maria Marzaioli
(@tsw_eczemaria)
https://www.dailymail.co.uk/health/article-6927041/Woman-43-claims-BEER-triggered-eczema.html

https://www.mirror.co.uk/news/uk-news/womans-eczema-flare-up-from-14338188

https://www.thesun.co.uk/fabulous/8873478/woman-skin-hot-fry-egg-eczema-flare/

https://www.ladbible.com/news/uk-womans-eczema-so-bad-she-could-have-fried-egg-on-hot-irritated-skin-20190416


Emilie Dunn
(@emilie_x_d)
https://metro.co.uk/2019/08/22/painful-eczema-leaves-woman-unable-to-wear-a-bra-or-underwear-after-coming-off-steroid-creams-10611713/

https://www.scotsman.com/news/woman-could-not-wear-bra-or-socks-for-more-than-two-years-because-of-skin-condition-1-4989052

https://www.hulldailymail.co.uk/news/health/eczema-steroid-withdrawal-pictures-shocking-3227935

https://www.thesun.co.uk/fabulous/11847299/woman-disgusting-stranger-primark-eczema-cream-cure/

https://metro.co.uk/2020/06/12/lifelong-eczema-sufferer-called-disgusting-passers-saved-8-wonder-cream-12842239/


Catherine ProvenÒ«al
(@purelycatherine)
https://www.thesun.co.uk/fabulous/9877960/mum-cured-eczema-ditching-steroid-creams/

https://www.mirror.co.uk/news/uk-news/mum-cured-painful-eczema-after-19637018\\

https://twnews.co.uk/gb-news/mum-cured-painful-eczema-after-ditching-creams-she-d-used-for-25-years


Nina Ajdin
https://www.dailymail.co.uk/health/article-6230513/Woman-28-cruelly-called-MONSTER-skin-turned-red-scaly-hair-fell-out.html

https://www.dailymail.co.uk/video/news/video-1774218/Video-Woman-battles-ten-year-steroid-cream-addiction-skin-burn.html

https://www.thesun.co.uk/fabulous/7400661/womans-skin-burns-smells-like-its-rotting-and-her-hair-falls-out-after-she-became-addicted-to-eczema-cream/

https://au.news.yahoo.com/woman-called-monster-bullies-rare-condition-made-skin-burn-hair-fall-022736487.html


Douglas Maddy (talking about his son, Charlie)
https://www.dailymail.co.uk/femail/article-4184846/Dad-says-son-left-bleeding-steroid-cream.html

https://www.thesun.co.uk/living/2861126/toddler-addicted-to-eczema-cream-suffers-agonising-red-raw-skin-after-coming-off-treatment/


Melanie Lynch
https://www.dailymail.co.uk/health/article-3937474/Extreme-eczema-sufferer-looked-like-monster-quitting-30-year-steroid-cream-addiction-clear-skin-time-life.html

https://www.mirror.co.uk/news/uk-news/eczema-sufferer-who-felt-like-9262871

https://www.thesun.co.uk/living/2188033/mums-skin-left-oozing-peeling-and-burning-after-she-ditched-eczema-cream-and-suffered-withdrawal-for-3-years/

https://pulptastic.com/melanie-lynch-eczema/


Samantha Saunders







Sofia love


https://www.dailyadvent.com/gb/news/010ab1cffc49c90f5ba8136f797cbbab-Steroid-creams-left-my-skin-as-thick-as-an-elephant-and-gave-me-months-of-insomnia


Anita Wong







Laura Barnett
https://www.dailymail.co.uk/health/article-6876099/Dental-nurse-45-left-feeling-like-zombie-ditching-steroid-creams-VACCUM-bed.html

https://metro.co.uk/2019/04/02/woman-felt-like-zombie-skin-peeled-off-addiction-eczema-cream-9091738/


Colby Chun
https://www.dailymail.co.uk/health/article-6614935/Toddler-overcoming-horrific-reaction-steroid-creams.html

https://www.thesun.co.uk/fabulous/8243612/toddler-reaction-eczema-cream-scream-oozing-skin/

https://www.mirror.co.uk/news/world-news/baby-left-screaming-agony-after-13886180

https://metro.co.uk/2019/01/21/baby-left-screaming-pain-steroid-cream-left-covered-oozing-scabs-8368787/

https://www.foxnews.com/health/hawaii-toddler-with-eczema-suffers-severe-lobster-red-oozing-skin-reaction-to-steroid-cream

https://people.com/health/toddlers-eczema-turns-into-oozing-scabbed-skin-on-every-inch-of-body-due-to-steroid-cream/







Theo Mills





Elin Wade
https://www.dailymail.co.uk/femail/article-9196789/Woman-severe-eczema-steroid-withdrawal-claims-doctors-laugh-her.html?ito=email_share_article-top


Gemma Day
https://www.dailymail.co.uk/health/article-6158391/Bride-24-severe-eczema-woke-week-wedding-eyes-swollen-shut.html

https://www.thesun.co.uk/fabulous/7237232/bride-skin-burned-steroid-cream-addiction/


Katy Jackson
https://www.dailymail.co.uk/health/article-6070255/Mother-two-looked-like-acid-attack-victim-ditching-steroids.html

https://www.thesun.co.uk/fabulous/7038747/mum-quit-steroid-cream-psoriasis-skin-burns-acid-attack-victim/


Danica Jaldbert
https://www.dailymail.co.uk/health/article-6859921/Eczema-sufferer-24-fell-deep-depression-ditching-steroid-creams.html


Jasmine Clarke
https://www.dailymail.co.uk/femail/article-5104377/Woman-suffers-excruciating-skin-condition.html

https://www.dailyrecord.co.uk/news/creams-beat-eczema-left-skin-9613003


Josephine Raneses (the article says that she cured her eczema through diet, but to me it seems like it's because she stopped using topical steroids ...)
https://www.dailymail.co.uk/femail/article-6062727/Yoga-teacher-treated-eczema-plant-based-diet.html


Ruth Holroyd
https://www.dailymail.co.uk/femail/article-8203783/Woman-says-eczema-look-twenty-years-older.html


Steph Meredith
https://www.tyla.com/life/real-life-woman-eczema-transformation-topical-steroid-withdrawal-nhs-guidance-20200413


Imogen Tingay
https://www.thesun.co.uk/fabulous/11930834/eczema-bad-severe-hermit-embarrassed-creams-skin-condition/


Thalia Daw


Misty Rowe-Elliot
https://www.dailymail.co.uk/femail/article-8632359/Mother-eczema-bad-turned-jobs-healed-naturally-vegan-diet.html?ito=facebook_share_fbia-bottom




https://www.itv.com/news/2023-09-25/people-with-oozing-pores-and-burning-skin-turn-to-tiktok-after-nhs-steroid-hell


Television coverage

'Woman's Life Destroyed by Extreme Eczema' (Briana Banos featured on the American TV show, The Doctors in 2015)

https://www.youtube.com/watch?v=-cATUV82W0E

Louise King's story featured on Quest Red's, The Bad Skin Clinic in 2019
https://www.facebook.com/questredtv/videos/364179727592077/


Podcasts

Inside Health 'Social prescribing, Topical steroid withdrawal, Pulmonary arterial hypertension' (Two doctors discuss topical steroid withdrawal 'syndrome' <<<<their words. Relevant section starts approximately 10 minutes in) 
https://www.bbc.co.uk/sounds/play/b0bd8h7b

The 'Healthy Skin Show' featuring Louise King's journey with TSW
https://www.skinterrupt.com/topical-steroid-withdrawal-story/

Another episode of 'The Healthy Skin Show' with Kathryn Tullos with information on what TSW is
https://www.skinterrupt.com/topical-steroid-withdrawal-crazy-symptoms/


For Youtube & Facebook, click (here).

For Blogs & Websites, click (here).

For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).

For Things to Potentially Avoid During TSW, click (here).

For Books Books Books, click (here).

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