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the outer shell

5 QUESTIONS WITH: Robyn


It brings me great pleasure to be able to bring you another 5 QUESTIONS WITH featuring one more member of our wonderful community that I feel lucky enough to be part of. What's incredible about our #TSWfamily is that some of us have 'known' each other for years now and I have watched so many people go through the worst of withdrawal and come out the other side, so without further ado, allow me to introduce the beautiful Robyn. We have been internet friends for a few years now and I'm so happy to be able to share her story with you all. I'll hand it over to Robyn:

1) Tell us a little bit about yourself and your skin journey.
I am 29 years old and was diagnosed with eczema at 17 months old. I used topical steroids like triamcinolone and desonide until I was 26 (so about 25 years of use!)

2) How did you find out about TSW?
About a year after I had my son, my skin was flaring up very badly. I went to my dermatologist and she gave me the typical steroids- but this time, they didn’t work. On top of that, my skin was flaring and peeling in places I had never had eczema, and the skin on my face was completely dry and flaking off. I literally googled ‘the steroids for my eczema stopped working’ and I found myself at the ITSAN.org site!
Robyn during withdrawal.


Robyn NOW!

3) Did you find that anything aided your healing?
Absolutely- stress management and mindfulness- yoga helped with those- as well as dietary changes, Manuka honey, Dead Sea salt baths and for the ooze- diaper cream. I avoided showers for a year, I also shaved my head. I found my hair made me itch and it was falling out anyway! And lastly, time.

4) Sum up TSW in five words.
Totally encompassing agonizing hell fire.

5) What positives, if any, have you found from going through TSW?
It’s hard for me to focus on the positives, but I’d say that I definitely lost my ego and vanity and in turn found strength and resilience. If you can get through TSW... you can get through anything.

To follow Robyn's fabulous Instagram account, click here.

Thank you so much Robyn <3

Links to my previous 5 QUESTIONS WITH:
Henni @rawsomesoul (here)
Alice @healthy_healer (here)
Maleeha @TSWHealed (here)
Nina Sloan (here)
Nick @Eczemacism (here)
Stephanie & Isaiah Quinn (here)
Nina @Nina from Eczema & Topical Steroid Withdrawal for WOMEN-Healing Through Positivity (here)
Stephanie @TheItchyConundrum (here)
Josh @Redskinrecoverydiary (here)
Briana @PREVENTABLE (here)
Melanie Lynch (here)
M.B. (here)
Stephanie Miller (here)
Holly Dillon @GetYourSkinOut (here)
Me (here)
Keisha Gregson (here)
Douglas Maddy & Charlie (here)
Gillian Breslin (here)
Jasmine and Jennifer (here)

Love & light,
Cara x

Another documentary on TSW?


I wanted to share something very exciting with you all...

On Sunday 3rd June 2018 I had the absolute pleasure of being part of another documentary currently in the works on red skin syndrome. How wonderful it is that we have not only one, but TWO documentaries on our condition now, which really does give me hope that soon our voices will be heard and no one else will have to go through something like TSW.

I met two girls from the group 'Girls who Film' who are making the documentary, Federica (behind the camera) and Emma, who is currently going through TSW herself.

Here is the fantastic introductory trailer for the documentary:

In a very lovely and informal interview with Emma, we talked all things skin and I can't wait to see it when it's all finished. What I love about our community is the bond we all share and it is always such a joy to speak to those who truly get it. No need for explanations. They know. They've been there.

Emma and I, taken after filming on Sunday 3rd June 2018 xxx
*Picture taken from her Instagram account, @tswemma*
































They are taking this huge project on themselves and as a result, they need our help. Click (here) for the link to their GoFundMe page. Even if you are unable to donate, let's spread the word that there are those willing to fight!

Wishing Emma & Federica the best of luck with their documentary and here's to a future where red skin syndrome needs no awareness and is a recognised medical condition.
Cara x
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