TSW. Trichotillomania. Books. Life.

The TSW Database: Medical Journals



When it comes to TSW, as far as I'm concerned, it's simple: stop using steroids, go through an horrific drug withdrawal and at the end of it you'll get better - sorted, But ask me about any medical journals or articles on our condition and I'm clueless. It's not that I don't have any interest in them, I just don't know where to start. Thankfully, I don't have to because someone within our incredible community got in touch recently offering to share their collection of medical journals and papers etc. with me for my TSW database. They have been collated from all over the internet with all but eight of them available for free.

I have to say, whilst reading over the papers in preparation for this post, it has made me angry. Even though I obviously felt like this before, within the case studies and findings written in black and white is pretty damning evidence that corticosteroid addiction exists and we have a very serious problem on our hands (literally). These drugs are creating something much worse than whatever they were used to treat in the first place. Something has got to be done, and fast.

I would like to give a huge thank you to Jordan Graham for making this post possible. At the bottom of the page, he has also created something quite fabulous, so read on for more information.

This community continues to amaze me and together we have the ability to create true change.
Cara x


General papers, articles and journals 

Topical corticosteroid withdrawal
(https://www.dermnetnz.org/topics/topical-corticosteroid-withdrawal/)
A general overview of TSW: what it is, the causes, symptoms, complications, diagnosis, treatment, prevention and outlook.

Topical steroid addiction in atopic dermatitis
(https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4207549/)
A general overview of topical steroid addiction, describing the symptoms and features of the condition which are based on the treatment of many cases of it. Written to offer a better understanding of TSA.

A prospective study of atopic dermatitis managed without topical corticosteroids for a 6-month period
A group of doctors studied a group of patients with atopic dermatitis (AD) to "assess the clinical outcomes in patients with AD who did not use TCS for 6 months and then compared our results with an earlier study by Furue et al which considered AD patients using TCS over 6 months". 

Cortisol Homeostasis in the Epidermis is Influenced by Topical Corticosteroids in Patients with Atopic Dermatitis
(https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5527739/)
A paper questioning whether topical corticosteroids influence the cortisol homeostasis in the skin. (I have no idea what I'm saying by the way).

Histological and Immunohistological Findings Using Anti-Cortisol Antibody in Atopic Dermatitis with Topical Steroid Addiction.
(https://link.springer.com/article/10.1007%2Fs13555-016-0096-7)
"The purpose of this study was to elucidate histological and immunohistological characteristics of TSA using anti-cortisol antibody".

Facing up to withdrawal from topical steroids
(https://journals.lww.com/nursing/Fulltext/2007/09000/Facing_up_to_withdrawal_from_topical_steroids.46.aspx)
*Link to download the PDF above* The article shares findings that by using topical corticosteroids for longer than two weeks can cause what they call, "steroid rosacea". It discusses how to treat it and how best to support a patient through the inevitable withdrawal. 

Rational and Ethical Use of Topical Corticosteroids Based on Safety and Efficacy
(https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3401837/)
An in-depth look at how best to use topical corticosteroids after a rise in the "improper use of these drugs by dermatologists, general physicians, and patients". It is a fascinating read. 

Systematic Review of the Topical Steroid Addiction and Topical Steroid Withdrawal Phenomenon in Children Diagnosed With Atopic Dermatitis and Treated With Topical Corticosteroids
(https://www.nursingcenter.com/pdfjournal?AID=4337200&an=01412499-201709000-00002&Journal_ID=849729&Issue_ID=4337195)
This study looks at the process of topical steroid withdrawal in children with data taken from medical literature, social media sites and blogs.

A systematic review of topical corticosteroid withdrawal (‘‘steroid addiction’’) in patients with atopic dermatitis and other dermatoses
(https://nationaleczema.org/wp-content/uploads/2015/04/Systematic-Review-TSA.pdf)
A review written by "the National Eczema Association Task Force" after the increasing rise in patients asking about topical steroid addiction due to the the "growing presence of social media dedicated to this topic" and discusses, "the current evidence regarding addiction/withdrawal".

Side-effects of topical steroids: A long overdue revisit 
(http://www.idoj.in/article.asp?issn=2229-5178;year=2014;volume=5;issue=4;spage=416;epage=425;aulast=Coondoo)
*Link to download the PDF above* Another review on topical steroids after, "rising instances of abuse and misuse leading to serious local, systemic and psychological side effects".

Topical steroid addiction in atopic dermatitis
(https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4207549/)
An article detailing the symptoms of, as they call it, "topical steroid addiction or red burning skin syndrome, based on the treatment of many cases of the illness". In this study, they look to shed some light in order to, "better understand the illness".

Topical corticosteroid withdrawal in a pediatric patient
(https://www.jaadcasereports.org/article/S2352-5126(17)30118-2/fulltext)
A report by three doctors from Portland, Oregon discussing the side effects of topical corticosteroids (TCS) and TCS withdrawal and how rarely it is documented in children. They highlight the case of a 14-year-old girl in their emergency department (ED) "with a pustular dermatosis of the face that arose after abrupt discontinuation of TCS". 

Topical corticosteroid addiction and phobia
(http://www.e-ijd.org/article.asp?issn=0019-5154;year=2014;volume=59;issue=5;spage=465;epage=468;aulast=Ghosh)
The article discusses topical steroid addiction and topical corticosteroid phobia which has been reported "particularly among parents of atopic children".

Utsättningsreaktioner efter användning av lokala kortikosteroider
(https://medibas.se/handboken/kliniska-kapitel/hud/tillstand-och-sjukdomar/erytem/utsattningsreaktioner-efter-anvandning-av-lokala-kortikosteroider/)
The Swedish website Medibas has officially listed TSW on their database as a risk of using topical steroids. 

Growth impairment in children with atopic eczema
This discusses growth impairment in children with atopic eczema, and those also using topical corticosteroids.

A Call to Retire Systemic Corticosteroids for Pediatric Atopic Dermatitis
An excellent paper, calling for dermatologists to stop using ora steroids in the treatment of eczema.

Topical steroid withdrawal reactions: a review of the evidence
“The authors concluded that topical steroid withdrawal reactions occur in children and can result from discontinuing topical steroids used for as little as 2 months.”

Topical corticosteroids: information on the risk of topical steroid withdrawal reactions
“Patient risk factors: Topical steroid withdrawal reactions are thought to occur after prolonged, frequent, or inappropriate use of moderate to high potency topical corticosteroids. Topical steroid withdrawal reactions can develop after application of a topical corticosteroid at least daily for longer than a year.[footnote 1][footnote 4][footnote 5][footnote 6] In children they can occur within as little as 2 months of daily use.[footnote 5] People with atopic dermatitis are thought to be most at risk of developing topical steroid withdrawal reactions. [footnote 1]”

Topical Steroid Withdrawal is a Targetable Excess of Mitochondrial NAD+
Whilst this isn't peer reviewed yet, the National Institute of Health (NIH), based in the US, conducted a pilot study about TSW in 2023 by analysing data from patients with TSW. This is very promising indeed.


Studies and medical journals etc. by the Australian doctor, Dr Belinda Sheary

Topical Steroid Withdrawal: A Case Series of 10 Children
(https://www.medicaljournals.se/acta/content_files/files/pdf/99/6/5412.pdf)
A long-term study written by Dr. Belinda Sheary on TSW in children from Australia, and according to ITSAN, is by far the most comprehensive study on TSW that they have seen to date.

Topical corticosteroid addiction and withdrawal – An overview for GPs
(https://www.racgp.org.au/download/Documents/AFP/2016/June/AFP-June-Clinical-Sheary.pdf)
A clear and well-written overview of our condition by the goddess that is Belinda Sheary.

Steroid Withdrawal Effects Following Long-term Topical Corticosteroid Use
(https://journals.lww.com/dermatitis/Fulltext/2018/07000/Steroid_Withdrawal_Effects_Following_Long_term.8.aspx#pdf-link)
The goddess is back with a study to, "examine the demographics and outcomes in adult patients who believe they are experiencing TSW following discontinuation of chronic TCS overuse" between January 2015 and February 2018.

Topical corticosteroid addiction and withdrawal in a 6 year old
(https://www.publish.csiro.au/HC/pdf/HC16049)
A case study by Dr Sheary of a "six-year-old girl with intractable eczema who was diagnosed with TCS addiction after inadvertent TCS withdrawal" and made a full recovery after 14 months with only "mild residual eczema symptoms".


Papers and studies by Dr Marvin Rapaport (unfortunately not available for free)

Corticosteroid addiction and withdrawal in the atopic: the red burning skin syndrome
(https://www.sciencedirect.com/science/article/pii/S0738081X02003656?via%3Dihub)
A detailed paper on our condition and the withdrawal process.

Drug companies, dermatologists, and the patient
(https://www.jaad.org/article/S0190-9622(06)02270-5/fulltext)
A fascinating paper into the concerns expressed by dermatologists over the increasing involvement of pharmaceutical companies and their influence in the medical community and beyond.

Eyelid dermatitis to red face syndrome to cure: Clinical experience in 100 cases
(https://www.jaad.org/article/S0190-9622(99)70118-0/pdf)
A detailed study into all eyelid dermatitis patients seen over an 18-year period which revealed the reason for their prolonged condition was an, "addiction to the use of topical or systemic corticosteroids". 

Serum Nitric Oxide Levels in "Red" Patients: Separating Corticosteroid-Addicted Patients From Those With Chronic Eczema
(https://jamanetwork.com/journals/jamadermatology/article-abstract/480695)
This is a very wordy and scientific paper that makes it blindingly obvious that steroid addiction exists. 

Rebound Vasodilation From Long-term Topical Corticosteroid Use
(https://jamanetwork.com/journals/jamadermatology/article-abstract/410943?resultClick=1)
Another very wordy and scientific paper where Dr Rapaport suggests another approach to the "'problem' of atopy before instituting treatments with new medications".

The red skin syndromes: corticosteroid addiction and withdrawal
(https://www.tandfonline.com/doi/full/10.1586/17469872.1.4.547)
Another detailed paper by Dr Rapaport after treating over 1500 patients who were previously diagnosed with "worsening eczema" and finding instead that their problems were caused by an addiction to topical steroids and the only "cure" was "total cessation of these medications, requiring at times 1–2 years attended by multiple flares of the rash". It breaks down the symptoms, why they happen, and how best to treat it.

Prolonged Erythema After Facial Laser Resurfacing or Phenol Peel Secondary to Corticosteroid Addiction
(https://journals.lww.com/dermatologicsurgery/Abstract/1999/10000/Prolonged_Erythema_After_Facial_Laser_Resurfacing.7.aspx)
The objective of this paper is to "describe patients whose postoperative care consisted of prolonged use of topical corticosteroids and to assess the outcome of cessation of this medicine" as "the use of topical corticosteroid preparations postoperatively in peel and resurfacing patients is believed to be a major cause of prolonged erythema"<<< thought I'd leave the paper to explain what it is rather than me trying (and failing ...) to do so.


Another medical review (also unfortunately not free)

Misuse and abuse of topical steroids: implications
(https://tandfonline.com/doi/full/10.1586/17469872.2.1.31)
This medical review "discusses the concept of ‘misuse and abuse’ of topical steroids, gives an overview of topical steroids, differentiates ‘misuse’ as opposed to ‘abuse’ of application of topical steroids as they occur in different settings and provides a schematic algorithm for the appropriate and optimal application of topical steroids". Sometimes it really is easier to let the article explain what it is than me trying to ...


Click (here) for Jordan's amazing Dropbox featuring all the journals and documents etc. included in this post.

Also, I know I promised you something fabulous ... and so, from the medical journals and reports etc. shared above, Jordan has created the list below taking data from the journals etc. to shed some light on how long the withdrawal process might take. This is obviously not a guarantee and as you know already I believe we are all different, but still a fascinating read. PLEASE CAN SOMEONE JUST STUDY THIS PROPERLY ALREADY.


Topical Steroid Withdrawal Recovery Time According to Medical Papers Only

*Last updated: 06/09/19*
Please Remember – Everybody’s recovery time is individual. This research is not designed to predict your recovery time but may give you an idea of withdrawal time to expect. After the withdrawal process is complete, you may still have your pre-existing skin condition.

- Jordan Graham

Dr Belinda Sheary - Topical Steroid Withdrawal: A Case Series of 10 Children
(https://www.medicaljournals.se/acta/content/html/10.2340/00015555-3144)

Case 1: 22 months
Case 2: 29 months
Case 3: 28 months
Case 4: 30 months
Case 5: Not clearly documented 
Case 6: May have re-applied steroids 
Case 7: 28 months
Case 8: 24 months
Case 9: 18 months
Case 10: 29 months
Total of 208 months ÷ 8 patients = 26 months
According to this research paper, the average recovery time for 8 children was 26 months.

Statements made from Dr Marvin Rapaports medical papers

The red skin syndromes: corticosteroid addiction and withdrawal
(https://www.tandfonline.com/doi/full/10.1586/17469872.1.4.547)

  • Cure occurred in all patients after total cessation of these medications, requiring at times 1-2 years attended by multiple flares of the rash.
  • Cure occurred anytime from 4 months to 2 years, depending on the how long they had used steroid creams in the past.
  • Cure with total cessation of rashes, total cessation of flares and total cessation of any and all therapy will occur in 6-24 months.
  • If the addiction occurred over many years, then the withdrawal phase can go on for 12-24 months. The distant areas do not manifest rash anymore, only the original long term, steroid treated sites recur but with milder eruptions.
  • Withdrawal from the corticosteroids typically leads to total cure but can take 6 to 24 months for complete resolution.

Eyelid dermatitis to red face syndrome to cure: clinical experience of 100 cases
(https://www.jaad.org/article/S0190-9622(99)70118-0/pdf)

  • The length of ‘normal time’ between flares usually increased and the redness became more short-lived. Many of the patients required 6 to 18 months to clear totally, experiencing 3 to 12 fares.
  • Clearing, with no flares for at least 4 to 6 weeks, occurred between 2 and 30 months after corticosteroid cessation for the atopic patients and 1 to 19 months for the seborrheic dermatitis patients. The ‘other’ category of 9 patients took 2 to 7 months to clear.

Corticosteroid addiction and withdrawal in the atopic: The red burning skin syndrome
(https://www.sciencedirect.com/science/article/pii/S0738081X02003656?via%3Dihub)

  • Unfortunately, the time required for corticosteroid withdrawal mirrored the time over which they had originally been applied and was often protracted.
  • The atopic individuals in our series had the most difficult and protracted courses after steroid cessation, whereas the nonatopic individuals usually cleared within 2 to 3 months.
  • For facial rash, withdrawal periods ranged from 2 months to 2.5 years. Rebound vasodilation from long term topical corticosteroid use
  • In many patients, several flares and rebounds occurred during the withdrawal phase, which lasted from 1 to 2 years. All patients needed no further treatment, and there was no recurring rash. Lifestyle returned to pre-addicted level. Among my patients, only a few exhibited the underlying eczema again, usually years later, as only isolated patches during winter. Lubrication and UV light irradiation were used without corticosteroids, and resolution quickly occurred.

For Youtube & Facebook, click (here).

For Blogs & Websites, click (here).

For TikTok & Instagram accounts, click (here).
For The Media, click (here).

For Things to Potentially Avoid During TSW, click (here).

For Books Books Books, click (here).

Month 75 // Time


This was completely unplanned but yesterday I realised that today marks 75 months since I began my journey with topical steroid withdrawal, and not one for missing any kind of milestone, I just had to document it in a small way at least.
Left - Monday 29th July 2013 (nearly 2 months into TSW).
Right - yesterday! Give it time.

I genuinely can't believe so much time has passed, and yet at the same time, it feels like a lifetime ago. Another person ago. Now, I'm so glad I wrote a book about it all because, as predicted, I can't remember what happened. When you are in pain, time seems to stand still and those precious moments of bliss pass by too fast. That is just the way it is. Like me during secondary school. I was desperately unhappy and at the time, I felt like I would be stuck as a teenager forever, but now as an adult, time seems to speed up when I want to hold onto every single moment. 

Time. Time. Time. That is all it boils down to. Not enough of it - too much of it. Never just right. 

I go on about time because topical steroid withdrawal is the ultimate waiting game, although you end up winning more than you ever thought was possible: skin freedom.

Give it time.
Cara x

The TSW Database



After wanting to do this for well over two years, I am pleased to be able to share my TSW database (of sorts ...) with you all. A while ago, I realised there was nowhere that listed every resource on our iatrogenic condition online ... and so I decided I wanted to change that. We now have so much information at our disposal, and yet at the same time, so little, because it can be overwhelming knowing where to start, especially if you have only just begun your journey with topical steroid withdrawal. I have split this up into three separate categories/posts: Blogs & Websites, YouTube & Facebook and TikTok & Instagram accounts.

For Blogs & Websites, I think I have pretty much listed every single TSW blog out there. There are naturally very few TSW-specific websites, but I've done what I can to put what little we have on our condition under one roof.

For YouTube & Facebook, I think I have found *most* of the YouTube videos and channels dedicated to our condition, then shared what I believe to be all the Facebook groups and pages currently available.

For TikTok & Instagram accounts, I have listed (I think) every single Instagram account of those who have been through, or are currently going through, TSW. ***Then on 18th July 2021, I also added to the post a list of all the TSW-related TikTok accounts and videos.***

Every month I will be updating the pages, but at the rate Instagram accounts especially are popping up, this will be out of date tomorrow. I will do my best to keep adding to the lists when I can but please let me know if I have missed any!

***An update, written on Saturday 7th September 2019***
After putting up my database last week, someone within our incredible community got in touch offering to share their collection of medical journals and papers etc. with me for my database. The link to the journals can be found below.

***Another update, written on Monday 9th December 2019***
Last weekend, it hit me that I had completely forgotten to include within my database all the stories that have been featured in the media on our condition - so today, I did exactly that. The link to all media articles etc. can be found below.

***Another update, written on Sunday 24th January 2021***
I had been hearing about many things which could potentially be an issue for anyone going through TSW so I decided to add a new section to the database listing them all. They are things I wish I had known during my own withdrawal. The link to the things to potentially avoid during TSW can be found below.

***Another update, writen on Saturday 12th February 2022***
After seeing how many books that are about, or related to, TSW now, I thought it was about time that they were collated and put into one post. The link to Books Books Books can be found below.


For Blogs & Websites, click (here).
For Youtube & Facebook, click (here).
For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).
For The Media, click (here).
For Things to Potentially Avoid During TSW, click (here).
For Books Books Books, click (here).


I hope you find the posts useful and it makes navigating our condition a little easier.

Cara x

The TSW Database: YouTube & Facebook



I have listed the YouTube videos and channels first followed by all the Facebook pages and groups I could find on TSW, but as always, please let me know if I have missed any and I will happily amend.

Cara x


TSW YouTube Channels

TSW Atlas
In October 2020, Dr Heba Khaled released the video 'An Overview of TSW' which in my opinion is one of the most exciting things to happen to our condition. So far, the channel only has the one video - but trust me when I say that you need to subscribe to it and watch the video immediately. I have been promised that more videos are on their way and I couldn't be more excited.
Serbian translation of the video: https://www.youtube.com/watch?v=YN7BthoX3xk

Josh's Recovery
(https://www.youtube.com/channel/UCfHlmdXVPcm4lG7LgqWh2mw)
Josh's channel helped me so much through my own withdrawal. His videos take you from the first few days of withdrawal through to his eventual recovery. His positive attitude during TSW encouraged me to do the same and I am eternally grateful for his channel. Even better, he let me share his story on my blog (here).

Nina Sloan
(https://www.youtube.com/channel/UCbbb3z6ItXZoge-vGt0d91A)
Nina started withdrawal in 2012 and made a full recovery 8 months later. Her videos were such an inspiration to me throughout my own withdrawal and I was lucky enough to feature her story on my blog (here).

Briana Banos
(https://www.youtube.com/channel/UCGul7qzTlVJ6fOfHKV2ao8A)
Briana started withdrawal in 2015 and documented her battle with her skin through poignant but funny videos. In March 2019, she made the incredible documentary on TSW: Preventable: Protecting our Largest Organ, which is available to watch on her channel.

Laura Stageman
(https://www.youtube.com/channel/UCZdFgsIQii7MgSv-MQ725vw)
Laura started TSW in 2014 and shared a video when she was suffering very badly, then another one 5 months later when she thought she had healed. Since then, she has had a rocky road to recovery but is currently doing well.

Gillian Barbara
(https://www.youtube.com/channel/UCHkTy91jgaCDK77L_GxqHiw)
Gillian started her TSW journey in 2016 and has since made a full recovery. Since recovering, she has posted a few videos about her experience. I have also featured her story on my blog (here).

TSW Steph
(https://www.youtube.com/channel/UCLeIHsBce71HdRnYtYkgi1w)
Steph began her journey with TSW in 2016 and has posted videos documenting her recovery. She is currently using the immunosuppressant methotrexate and is doing well.

Steph Meredith
(https://www.youtube.com/channel/UCfBNisvyrmSnCYd4NPiFRjw)
Another Steph who began her TSW journey on 4th September 2019 then set up her YouTube channel and posted her first video a month later, talking about her experience so far.

James
(https://www.youtube.com/channel/UCy-ymV_bhXLg4FL_cKXvPmg)
James started TSW in late 2013 and has shared a couple of videos about his withdrawal.

Tracy
(https://www.youtube.com/channel/UCAc4CBdemIu5yky4v2CblnA)
Tracy started withdrawal in 2011 and has since made a full recovery, although his channel is many years out of date.

Gary Smith
(https://www.youtube.com/channel/UCsTlVnW6legzNAQ1zMQgTYA)
Gary started withdrawal in 2014 and has since made a full recovery. His videos document him at various stages of withdrawal.

Nina Ajdin
(https://www.youtube.com/channel/UCrQMqNdY201OxxOUstxqmqw)
Nina started withdrawal in 2014 and has had a very tough journey, which she shares openly in her videos. She is currently doing much better. I have also featured her story on my blog (here).

Zip
(https://www.youtube.com/channel/UCJaCj2sXAK0tuBnR9JyYZow)
Zip started TSW in 2015 and has since made a full recovery. He has shared a couple of videos in which he talks about his journey and I have also featured his story on my blog (here).

Brittany Hallberg
(https://www.youtube.com/channel/UCmgaHiCOp_n8qY6ftfdNKKg)
Brittany began her journey with TSW in 2017 and has since made a full recovery. She posts videos about her withdrawal and I have also shared her story on my blog (here).

Mireya P
(https://www.youtube.com/channel/UCHoQPYHraq7NQNZHu8kiufw)
Mireya began her TSW journey in 2016 and has since made a full recovery. In her videos, she discusses her experience.

Zainab
(https://www.youtube.com/user/iambeezee)
Zainab started TSW in 2016 and shares her progress and struggles in some great videos on her channel.

Ashley Lora
(https://www.youtube.com/channel/UCFNohNmaY5H68dnST1GUKmg/videos)
Ashley's channel features videos about her journey with TSW and Dupixent.

Hayley Woolcock
(https://www.youtube.com/channel/UCGv3kS7vYPmaaxj-W70xSCw0)
Hayley began her journey in 2019 and currently has one video up discussing her withdrawal so far.

Topical Steroids vs Us
(https://www.youtube.com/channel/UCzpeVYa1JEGwl2dyf-xu6aw)
The focus of this channel is to raise awareness for the side effects of topical steroids by interviewing others going through topical steroid withdrawal and also offering insight into our condition.

Eden Brown
(https://www.youtube.com/channel/UCv7X-UBzj7l3R7SaqMPuyYQ)
Eden's channel has videos on her journey with TSW, along with some lovely vlogs of living with TSA. 

Santiago Aufranc
Santiago has shared many informative videos about his TSW journey (in Spanish).


Other TSW YouTube channels

Michaela Warne

TReczema
(https://www.youtube.com/channel/UCr6LBvYS5fdHLK5r9fVsffg)

EczemaWarrior
(https://www.youtube.com/channel/UCZ249B5cf5NYxfwYhYFboBA)

SkinMisbehaving
(https://www.youtube.com/channel/UCEZJtUjHvlX7i29pjjiuWwg)

Eczema Phoenix
(https://www.youtube.com/channel/UCAShREuK-bWCZm4g8B8OKOQ)

Eczema Conquerors
(https://www.youtube.com/user/PrimePhysiqNutrition/featured)

Karen Wang
(https://www.youtube.com/channel/UCXPJH2B_vqymBQMub7QDNAA)

Kel Preston
(https://www.youtube.com/channel/UCSff8EOXCu3t7r0AJX3pD2Q/featured)

Top Eczema Treatments
(https://www.youtube.com/channel/UCwYxxHFM_ebv9IV2drgF1oQ/featured)

Aleatopica-English
(https://www.youtube.com/channel/UCFJi4QiTbYlL3gVC5UHvu9Q/featured)

Mel Therese
(https://www.youtube.com/channel/UCHoTsOrepTgVxgQHgqTHSLw/feed)

Paula
(https://www.youtube.com/channel/UC0vkeTgCAbSyJm0EHz5N_Lg)

Mishal Hussain
(https://www.youtube.com/channel/UCWQsFLBjXg7l_xLCxoxKE1w)

Zachary
(https://www.youtube.com/user/MrPteroZactyl)

Danae
(https://www.youtube.com/channel/UCI4ts6039NUtzX9QGwB1WeA)

Sagacious Living
(https://www.youtube.com/channel/UC2qJtoSbXWAsYjPbieuzaLg)

Mel
(https://www.youtube.com/channel/UCHoTsOrepTgVxgQHgqTHSLw/feed)

Tara Cameron
(https://www.youtube.com/channel/UCAF_m4DbieIU_L_9ubhNwkQ/featured)

Playlist on TSW By ReliableRoots
(https://www.youtube.com/playlist?list=PLfbq1ZRuV9U0FZJag3i14mYpOqEpmzHfu)


YouTube videos on TSW

An interview with Dr Rapaport
(https://www.youtube.com/watch?v=8nK0RttPg-U)

Another interview with Dr Rapaport
(https://www.youtube.com/watch?v=0JNVj6eAHDs)

A brilliant video with Dr Lahari on the 'Use of topical steroid & the menace of topical steroid abuse'
(https://www.youtube.com/watch?v=9LZZ1ivBvsM)

A video by Mark Palace, husband of ITSAN founder Kelly Palace, on the dangers of topical steroids
(https://www.youtube.com/watch?v=GhPgNd7n7Sk)

A video by a popular YouTuber, Joana Ceddia, who shared that she has been going through TSW for six months

A brilliant video by Daisy Malin (@daisymalin_skin) via the Truly channel on what it is like living with TSW

A woman who has a fitness channel on YouTube shares that she is currently going through TSW 

Another woman with a fitness channel on YouTube shares her experience through TSW

My Spiritual Enlightenment Story & TSW Experience by Christopher Tan

My TSW Healing Journey by Leila's Eczema
(https://www.youtube.com/watch?v=9jDOET0V1_8&t=25s)

‎A heartbreaking but uplifting video by Kerileanne on her experience so far a year in to TSW and the impact it can have on your life
(https://www.youtube.com/watch?v=qCCNf-5j9OA)

A video of a baby who has been going through TSW for one year 
(https://www.youtube.com/watch?v=O6vrz58sJmM)

Ari Yunda
(https://www.youtube.com/watch?v=DM_POdsGo38)

Kim C

Pixie Parker
(https://www.youtube.com/watch?v=5I5qJ7I81q4)

A woman called Michaela who made a full recovery from TSA shares her top tips for going through withdrawal
(https://www.youtube.com/watch?v=hXkIZ_AWDuE)

Mereani started TSW in 2015 and shares her progress 20 months in
(https://www.youtube.com/watch?v=xo_ZVCP6p70)

A video by BigGuy Journey who spreads awareness for TSW
(https://www.youtube.com/watch?v=Mpv-sABJVMY)

A video by Ken Preston who shares his battle through TSW
(https://www.youtube.com/watch?v=YXhje03xbNw)

A video by a woman who made a full recovery from TSA after 11 months
(https://www.youtube.com/watch?v=4qa8jNgIDMI)

A video featuring children who have been through TSW with voiceovers from their mothers
(https://www.youtube.com/watch?v=Hr5ZbvvfGUc)

A video by a woman called Hannah who shares her journey through TSW and also some exciting news
(https://www.youtube.com/watch?v=nAjAlUBPZRI)

Hannah's music video for All Kinds of Broken with all proceeds from the single going to ITSAN
(https://www.youtube.com/watch?v=CLqTjzsbbOg)

A woman celebrating 2 years of TSW
(https://www.youtube.com/watch?v=ZA6RkG_JhB4)


Facebook Pages

Preventable: Protecting our Largest Organ
https://www.facebook.com/preventabledoc/?eid=ARCp_1mIjcak59Ldp-fJVkYxrpODHT1EhbSmXJ0Ojkl0YtWSyqbIb4uu2XwdSKYNH_w4vEjIclccZ7Jy

Red Skin Syndrome/Topical Steroid Addiction Awareness Facebook page
https://www.facebook.com/redskinsyndrome/?eid=ARA7-8CRAVdpCHHjJvEq8jhHABwX15mmxji51_hqvPwJy3kO8VCQGvaR2V1DY1B-FZA9T_xlX4I_3G2N

Camille Knowles
https://www.facebook.com/camilleknowles/?eid=ARCRIAZ0OD4HjxzCcdTYy3kCJ--mETUlPK_ItTGhDU8q3bW0I75lH8FTkChl748SKwpUqdL5siZxGdQg

The Positive Skin Project
https://www.facebook.com/positiveskinproject/?eid=ARDYgujQT5CzCBNWSYbPyN_1HtZOOkjgv9MLIGNmfYkDnAYf6vi44ZD54LVY-LWwHEKAXW40RbR_M9b_

Peace for Rhys - Eczema Free
https://www.facebook.com/peaceforrhysezcemafree/?eid=ARBoUVvC84ixlYLAudLVvQtLdYiJX7jI7EnMcRv_kr1bhU-rp-QzrYPHvfRdisiMBcjzHivqlO5INXqW

Topical Steroid Addiction
https://www.facebook.com/Topical-Steroid-Addiction-1748398075489608/?eid=ARAkGTI-3LINJhdQocw5GlWEcy-YalUHwdJKRNM4YTePIICcKEtfj0WhRt0GIi1KY_lttR0iGOo2KuFi

The Eczema Company
https://www.facebook.com/theeczemacompany/?eid=ARACPmWjpY_t--6piNocXvUoB48l2iiHg0JlAzF2384Dx55j3BK96kQ23-0q_sv3tptQ6g0gt0JGmOix

Topical Steroid Education
https://www.facebook.com/topicalsteroideducation/?eid=ARC9ScYiEYQOcfAzDIv4zUTZuSfX-Ew2KLe_RCnKSKlwQZmJX9hXcM7kZkIQ2SaFgjHFsPpdIu-hX_mJ

Top Eczema Treatments
https://www.facebook.com/topeczematreatments/?eid=ARBMggHaPXPqogRu4EOsaN9hvWcKqxw_AzOijxJm-z-Bt7_CkyWYJqv4eNkW4Vzu76idUGe2O57ptkHv

Dr. Koushik Lahiri, Dermatologist
https://www.facebook.com/DrLahiriSkinSpecialist/?eid=ARCJwxSmMQt-D-yIPUue-GbF9Y2ToEkhTHLGYLWq5kaE86Z-8KOPjdbuKK4DFPYFHEi2BQPUkbA5sZvZ

No steroid cream on skin without a Dermatologist's prescription
https://www.facebook.com/NoMoreSteroidAbuse/?eid=ARDTUZxGYgojCBqx5W8av1fz3amud5447ORMFflODOzPNT_BtfsW0APBk8UpI4pyqukPJTGt863khB_e

ITSAN Topical Steroid Withdrawal RSS Support
https://www.facebook.com/InternationalTopicalSteroidAddictionNetworkitsan/?eid=ARCeTTUknx2vXq0aeNaDV-vSQkpHATCZmhf85xL-hFxSGGGy2azdoQUBbHgRGBIqy-S6_AofMEVbYgx-

Red Skin Syndrome/Topical Steroid Addiction Awareness
https://www.facebook.com/redskinsyndrome/?eid=ARB5jSPxXpquXcyt-Ajlu35ksje_sIdU7tRzW6UmhMhegZwT8Y7iGIbuDpMOmYnZfVVSuGI9mG9RjjYz

National Eczema Association
https://www.facebook.com/nationaleczema/?eid=ARADe5FwOysOfp8Ows0zGXX56AH4AE3QlLBdFyQASlPFm30ZGWfQZ-B8WhMUW9A953gWavnlkacUqy31

Topical Steroid Withdrawal / Red Skin Syndrome Support
https://www.facebook.com/TSWSupport/?ref=br_rs

MyJourney with Topical Steroid Withdrawal, Red Man Syndrome
https://www.facebook.com/MyJourney-with-Topical-Steroid-Withdrawal-Red-Man-Syndrome-1496138703935950/?ref=br_rs

Evie's Eczema and Topical Steroid Withdrawal Journey
https://www.facebook.com/evieseczemaandtopicalsteroidjourney/?ref=br_rs

Kline's hell of topical steroid withdrawal, red skin syndrome
https://www.facebook.com/KlinesJourneyOnTheGapsDiet/?ref=br_rs

Healing Happens / Topical Steroid Withdrawal / RSS Success Stories
https://www.facebook.com/TSWSuccess/?ref=br_rs

Topical steroid withdrawal prayer and support group
https://www.facebook.com/Topical-steroid-withdrawal-prayer-and-support-group-1894361304142279/?ref=br_rs

NMT for TSW RSS Eczema - topical steroid withdrawal red skin syndrome
https://www.facebook.com/NMT-for-TSW-RSS-Eczema-topical-steroid-withdrawal-red-skin-syndrome-2318846601702706/?ref=br_rs

Topical Steroid Addiction HK
https://www.facebook.com/TopicalSteroidAddictionHK/?ref=br_rs

Steroid Red Skin Syndrome and Skin Remedies
https://www.facebook.com/steroidredskinsyndrome/?ref=br_rs

Dr Marvin Rapaport, MD
https://www.facebook.com/UnderstandingRedSkinSyndrome/?ref=br_rs

Eczema, Red Skin Syndrome, TWS Candida, gut health Support Group
https://www.facebook.com/Eczema-Red-Skin-Syndrome-TWS-Candida-gut-health-Support-Group-1266315446723423/?ref=br_rs

Steroid Red Skin Syndrome and Skin Remedies
https://www.facebook.com/steroidredskinsyndrome/?ref=br_rs


Facebook Groups

- Topical Steroid Withdrawal-Red Skin Syndrome Support Group
- Eczema & Topical Steroid Withdrawal for WOMEN-Healing Through Positivity
- ITSAN Topical Steroid Withdrawal Syndrome Support Group
- TSW London Network
- Eczema and Topical Steroid Addiction Awareness (TSA) Group
- Skin Support and Wellness Community (Eczema, Psoriasis, Acne etc)
- Healing Happens / Topical Steroid Withdrawal / RSS Success Stories
- Eczema Evolution & Topical Steroid Withdrawal
- Topical Steroid Withdrawal / TSA / RSS – an alternative (AR)
- New and Expecting Mothers going through Topical Steroid Withdrawal
- Healing Topical Steroid Withdrawal/RSS with Scientific Approach
- Topical Steroid Withdrawal/Red Skin Syndrome Support & Awareness
- Dating/Singles - Eczema/Topical Steroid Withdrawal
- Stop Topical Steroids. Start HEALING.
- Topical Steroid Withdrawal Foundation
- Topical Steroid Withdrawal Recovery - The Red-Faced Warriors Unite!
- Topical Steroid Withdrawal Babies and Kids
- Topical Steroid Withdrawal Australia Group
- IMIA-TSW Informed Moms In Action-Topical Steroid Withdrawal
- Protopic/Elidel Withdrawal Support Group
- Eczema Parents - Topical Steroid Awareness Group
- steroid induced dermal atrophy and tsw (male group)
- Singapore Topical Steroid Withdrawal / Red Skin Syndrome Support Group
- Shared Successes for Topical Steroid Withdrawal (TSW)
- Red Light Therapy & Topical Steroid Withdrawal
- Topical Steroid Withdrawal Hawaii
- Topical Steroid Withdrawal- Red Skin Syndrom (TSW/RSS) - US & military Fam
- Blayne's Fight Against Red Skin Syndrome (topical steroid addiction )
- TOPICAL STEROID WITHDRAWAL. GRUPO DE APOYO EN ESPAÑOL.
- NAAE - Skin Education (including TSA/TSW)
- Topical Steroid Withdrawal- Partner/Caregiver Support Group
- eczema & topical steroid withdrawal-red skin syndrome support group
- Red Skin Syndrome/ Topical Steroid Withdrawal Support Group
- Topical steroids withdrawal Support Group
- Eczema, Red Skin Syndrome, TSW and other skin conditions awareness group
- Parents of Children with Chronic Eczema & Skin Issues Support Group
- My journey with Red Skin Syndrome (RSS, TSA & TSW)
- Singapore Topical Steroid Withdrawal / Red Skin Syndrome Support Group
- RED SKIN SYNDROME CZ/SK
- Psoriasis, Eczema & other Skin Problems Philippines Support Group
- eczema & topical steroid withdrawal-red skin syndrome support group
- Red Skin Syndrome/ Topical Steroid Withdrawal Support Group
- 類固醇上癮(香港) - Topical.Steroid.Addiction.HK
- IMIA-TSW Informed Moms In Action-Topical Steroid Withdrawal
- LDN for TSW - Safe Healing Therapies
- Using Oral Immunosuppressants in TSW Support Group
- Long Term TSW Warriors
- TSA Caregivers rock!
- The NMT Healed Club (No Moisturizing Treatment)
- Parents of Children with Chronic Eczema & Skin Issues Support Group
- Parents of Children suffering with eczema
- Support group for NMT - TSW
- TSW, TSA, RSS - Szteroidelvonás, Szteroidfüggőség, Vörös bőr szindróma


For Blogs & Websites, click (here).
For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).
For The Media, click (here).
For Things to Potentially Avoid During TSW (here).

The TSW Database: Blogs & Websites



I have already shared some of the websites and blogs in a previous post (here), but I have elaborated on the original list to include every single website and blog I could find on our condition ... but do let me know if I have missed any!

Cara x


Websites

ITSAN
(ITSAN.org)
Safe to say this is pretty much the mothership for our condition.

Preventable
(https://preventabledoc.com)
The website for the BRILLIANT documentary on topical steroid addiction, Preventable: Protecting Our Largest Organ.

Dr. Marvin Rapaport
(www.red-skin-syndrome.com)
I like to call him the godfather of TSW. 

Dr. Fukaya
(www.mototsugufukaya.blogspot.co.uk)
Another godfather (doctor) of TSW who wants to spread awareness for our condition.

The Home Herbalist
(https://www.etsy.com/shop/thehomeherbalist/)
An Etsy shop run by a woman called Stephanie who created balms for her son, Isaiah, who went through topical steroid withdrawal. He has since made a full recovery and her balms prove to be popular within the TSW community. 

Eczema Conquerors
(https://www.eczemaconquerors.com)
The website for a holistic nutritionist who overcame severe eczema and now helps others do the same.


Blogs on TSW that helped me through my own withdrawal

Jake & Libby's blog
(http://eczemahealing.blogspot.co.uk/)
Jake started withdrawal in 2012, and with the help of his girlfriend, Libby, made a full recovery in 2013. This was the first blog I ever found on TSW, and the first one to give me hope that I would get better.

Josh's blog 
(http://redskinrecoverydiary.blogspot.com)
Josh is an Australian guy who started TSW in 2012 and one of my all-time favourites. His laid-back attitude and positivity was exactly what I needed and made me want to be the same.

A Little Itchy's blog 
(http://alittleitchy.blogspot.co.uk)
This blog hasn't got much content on it but makes up for that with one fabulous transformation story. The picture of her 'healed' hands was bookmarked on my laptop and I would look at them every day to get through.

Juliana's blog 
(https://antisteroid.wordpress.com/)
Juliana is the true embodiment of a skin warrior. She's had a very long and tough withdrawal and her blog helped me so much through my own journey.


Some new finds ...

Isaiah Quinn (whose story I have featured on my blog *here*)
(https://isaiahquinn.blogspot.com)
Isaiah started withdrawal in 2013 as a baby and made a full recovery after 2 years.

My Baby Eczema
This is Lulu's website about her baby who went through topical steroid withdrawal and recovered after a year and a half.

Gary Smith
(http://garysmith333.blogspot.com)
Gary started TSW in 2014 and after a long 4+ year battle, has made a full recovery.

Topical Steroid Withdrawal // Red Skin Syndrome
(https://tsweczema.wordpress.com)
A woman who started withdrawal in 2012 and after 3 years, made a full recovery.

My Journey with Red Skin Syndrome
(https://journey-to-comfort-and-health.tumblr.com)
A woman who went through withdrawal in 2012 and made a full recovery after two years.

Itchy Lynd's Blog
(https://itchylynds82.wordpress.com)
Lyndsey started TSW in 2015 and even though she hasn't updated this blog in quite some time, she made a full recovery this year (2019) and looks absolutely amazing. For more information, visit her Instagram account @lyndsey_tsw.

TSW Healing Journey
A blog written by the mother of a little boy going through TSW. He is now three years TSW and doing so well. 

Topical Steroid Healing
A blog written by a mother called Jolene whose son is currently going through TSW. She set it up to provide information and raise awareness for our 'preventable' condition.

Eczemacism (whose story I have featured on my blog *here*)
(https://eczemacism.wordpress.com)
Nick started withdrawal in 2015 and has since made a full recovery.

Santiago's Blog
Santiago has put together a really informative blog on his journey through TSW, with lots of links to the things which helped him.

Scratchy Monster 
(http://scratchymonster.blogspot.com)
Set up by a mother whose daughter went through TSW in 2012 and made a full recovery around a year later.

Stopping Topical Steroids
(http://stoppingtopicalsteroids.blogspot.com)
Tracey started her journey with TSW in 2013 and has since made a full recovery.

Withdrawal of Steroid Creams
(http://withdrawalofsteroidcreams.blogspot.com)
Megs started TSW in October 2012 and made a full recovery nearly 3 years later.

Jessica Morrison
(http://www.jessicacasner.com/blog)
Jessica started TSW in 2016 and is close to making a full recovery.

Dave's Topical Steroid Withdrawal
(http://davestsw.blogspot.com)
Dave started TSW in 2013 and has just celebrated his 6 year anniversary and believes he is close to making a full recovery.

A Steroid Free Life
(http://asteroidfreelife.blogspot.com)
Vee started withdrawal in 2013 and as of 2016 (her last post) believes she is TSW free.

laleizel
(https://laleizel.wordpress.com)
Leizel went through withdrawal in 2016 and made a full recovery after a year but still suffers from various skin issues.

It's Not Eczema
(http://www.itsnoteczema.com/blog/topical-steroid-withdrawal)
A blog set up after recovering from TSW, Senovia started going through withdrawal in 2012 and it took approx 4 years for her to make a full recovery.

Eden's Skin
(http://edenskin.blogspot.com)
Written by Eden's mother, Eden started TSW in 2013 and made a full recovery a few years later. The blog is updated occasionally and Eden still appears to be doing well with only patches of mild eczema.

Our Itchy Boy
(http://ouritchyboy.blogspot.com)
Written by the mother of a child who went through TSW from July 2015 to approximately September 2017.

Balmonds
(https://balmonds.co.uk/blogs/blog/tagged/topical-steroid-withdrawal)
Blog for the skincare brand that features articles from members of the TSW and skin community.

Karen Wang
(https://www.karenkwang.com/pct-blog)
Karen started TSW in 2018 and has documented her journey through withdrawal on her blog.

My Poisoned Skin
(https://mypoisonedskin.wordpress.com)
Julie started TSW in 2016 but stopped updating the blog at month 15, although at the time she appeared to be doing well.

Eczema Struggles
(https://improvingeczema.wordpress.com)
A woman who started TSW at the end of 2012 and made a full recovery in 2014. At the time of her last post in 2014, she only had very mild eczema.

The Big Itch
(http://thebigitch13.blogspot.com)
A man who began his journey with TSW in 2012 and stopped blogging in 2014 around 17 months in, but at the time appeared to be doing well.

Elizabeth's Site
(https://elizabethssite.wordpress.com)
Elizabeth started withdrawal in 2012 and after 21 months, was still suffering badly. Unfortunately she stopped blogging at that point but I hope she is doing better now.

My Journey Through Topical Steroid Withdrawal
(https://myeczemajourneyuk.wordpress.com)
One woman's journey through TSW with many ups and downs along the way. Her last post was in 2017, at which point she was doing much better and learning to embrace her skin and accept any flares in the future.

Stopping Steroids
(http://stoppingsteroids.blogspot.com)
Another TSW blog. Unfortunately the author, Kary, has not blogged since 2017.

A Scratchy Little Girl in an Itchy Little World
(http://eczemajourney.weebly.com)
Mel started withdrawal in November 2014 and by month 17, appeared to be doing well. She stopped blogging but now runs the website, https://topeczematreatments.com.

Getting my Smile Back
(https://gettingmysmilebacktsw.home.blog)
Helen started her journey with TSW during the summer of 2019 so there are only a few posts on it for now.

The TSW Diaries 
(https://thetswdiaries.wordpress.com)
Pace started TSW in November 2016 and is currently doing better but still has a little way to go.

The Chronicles of Melly
(https://thechroniclesofmelly.wordpress.com)
Documenting Melly's journey with eczema. She is currently taking Dupixent and thriving.

My Topical Steroid Withdrawal Journey
(http://thethickskin.blogspot.com)
Sarah has been going through withdrawal for over five years but is currently using the immunosuppressant methotrexate and is doing well.

MLKA
(https://aurasandlightwork.com)
Michaela's journey with TSW and Colitis.

Eczema Illusion
(http://eczemaillusion.blogspot.com)
A woman who started TSW in 2012 and in her last post in 2014 was doing better but still had a little way to go.

Going Natural Mum
(https://goingnaturalmum.wordpress.com)
A blog written from February to July 2013 by a mother looking for a cure for her daughter's eczema and her journey to be steroid free.

boy vs self
(https://boyvself.wordpress.com)
A blog by K, documenting their journey through TSW from May to June 2013.

Eczema Journey
(https://eczemajourney.wordpress.com)
Steph started her journey with TSW in December 2012, but as of her last post in February 2016, appears to be using topical steroids again sparingly.

Eczema Excellence 
(https://eczemaexcellence.wordpress.com)
A woman who started TSW in 2013 and still appears to be dealing with skin issues and some food intolerances.

Eczemancipated
(https://eczemancipated.wordpress.com)
HP started TSW in 2012 and as of her last post in 2016, appeared to getting there but was still battling symptoms of TSA.

TSWbeatdown
(https://tswbeatdown.wordpress.com)
Chi started withdrawal in 2014 and as of 2017/2018, was doing much better, although still experiencing occasional flares.

I Have Eczema
(http://i-have-eczema.blogspot.com)
As of 2017, Jenny was four years into TSW but also taking ciclosporin. At the time of her last post, she said she was doing well and hoping to use Dupixent in the future.

Hayley's Journey Through Topical Steroid Withdrawal
(http://an-itch-in-time.blogspot.com)
Hayley started TSW in 2015 and as of her last post in 2018, was doing well but still suffered from sensitive/irritated skin.

Say No To Topical Steroids
(https://saynototopicalsteroids.wordpress.com)
Set up by a woman called Leslie, I am a little unsure of her start date, and even though it was updated pretty regularly in 2013, there have been no posts since 2014.

Nonscents at No. 10
(http://nonscentsatno10.co.uk)
Jemma is a lifestyle blogger who started TSW in 2019 and blogs about her skin journey and allergies.

Itchy, Red and Miserable!
(https://itchyred.blogspot.com)
JT started TSW in 2012. He is currently using Dupixent and doing well.

Kline's Topical Steroid Hell
(http://klinestopicalsteroidhell.blogspot.com)
A child who has been battling TSW for over six years. He is getting there, but it's been a very long road to recovery.

My Journey to Healthy Skin
(http://steroidfreeskin.blogspot.com)
Megan started her journey with TSW in 2013 and after a period in 2016 of 'healed' skin, started flaring again. She hasn't posted since her last flareup in 2016.

Zombie B Gone
(https://zombiebegone.wordpress.com)
A woman who started withdrawal in (I think) 2014 but unfortunately in 2017, started using topical steroids again.

My Little Red Warrior
(https://mylittleredwarrior.wordpress.com)
Written by a mother whose daughter went through TSW from 2013. The blog was only updated for a year, at which point she was doing better. 

Ruby Red Heals Steroid Induced Eczema
(https://rubyredandtsw.wordpress.com)
Ruby started TSW in 2013 and after two years, began using the immunosuppressant ciclosporin.

Skin of Rose
(https://skinofrose.blogspot.com)
Tommy set up her blog in 2011 to document her battle with TSW and as of her last post in 2016, appeared to be doing better.

Just Dupree
(https://www.justdupree.com/blog/topical-steroid-withdrawal)
Dupree documents her skin journey, having previously tried the Dr Aron method, amongst other things, and a failed attempt at TSW. She is currently making her second attempt to go through TSW which she began in early 2019.

Buffalo Alex
(https://buffaloalex.wordpress.com)
Alex began his journey with TSW in 2015 but only updated his blog up to month 3.

I Hate Steroids
(http://ihatesteroids.blogspot.com)
Only two posts on this blog from 2013 set up by a mother whose child, Joe, was going through TSW.

35 Years of Hell
(http://35yearsofhell.blogspot.com)
Siegfried started TSW at the end of 2013, but only blogged till week 3.

In My Skin
(http://inmyskin.uk)
Stuart started TSW in 2017 and has been making improvements year by year. His blog documents his skin journey.


Posts on non-TSW blogs

A fabulous lifestyle blog by my namesake, Cara, who has written about her journey with TSW
https://sweetcaralinn.com/index.php/2018/09/01/16-months-into-topical-steroid-withdrawal/

A blog post written by a mother who watched her daughter go through TSW
https://www.barenuhcessities.com/blogs/good-reads/in-the-battle-ring-with-topical-steroid-withdrawal-tsw

A blog post written by the lovely Jennifer who started topical steroid withdrawal in 2016
https://jenboylestudio.com/one-year-anniversary-topical-steroid-withdrawal/

A blog post featuring the fabulous @tsw_beezeebuzz
https://www.honestyforyourskin.co.uk/red-skin-syndrome-topical-steroid-withdrawal/

A blog post featuring the brilliant @tswsurvivor
https://www.thefunctionalnurse.blog/skin-care/2019/2/17/topical-steroid-withdrawal

A blog post featured on a fermented food website that was written by its founder who also suffered from TSA
https://www.fermentedbylab.com/blog/2018/7/18/three-years-on-how-i-manage-my-eczema

A blog post on topical steroid withdrawal featuring Mel from Top Eczema Treatments
https://itchylittleworld.com/top-eczema-treatments-from-itchy-to-inspired/

A blog post about TSW titled 'The TSW Debate', drawing passages from medical papers etc.
https://www.eczemalife.com/blogs/tsw/tsw-research

A blog post about 4-year-old Cosette's journey through TSW

For Youtube & Facebook, click (here).

For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).
For The Media, click (here).

For Things to Potentially Avoid During TSW, click (here).

For Books Books Books, click (here).

The TSW Database: TikTok & Instagram accounts



As promised, here is a list of every single Instagram account of someone who has been through, or is currently going through, topical steroid withdrawal. ***Also, after noticing how much the platform had grown in terms of TSW awareness, on Sunday 18th July 2021, I added a list of all the TSW-related TikTok accounts, which can be found at the beginning of this post.***

At first, due to the sheer volume of TSW Instagram accounts now, I didn't know how to organise them, but in the end, I realised that by breaking them all up by the year they started withdrawal was probably for the best so anyone reading this can compare their journey to others - although please don't do that because we are all different and you are not their withdrawal :)

Towards the bottom of the list, instead of by the year they started, I have divided some of the accounts by whether they are using anything to 'aid' (<<< I have put aid in inverted commas only because it is still a controversial subject within our community) healing, with drugs like cyclosporine, methotrexate and Dupixent, then also some accounts of people who suffer from eczema (or more likely people that don't realise they actually have topical steroid addiction - but that's a story for another day ...).

Again, please let me know if I've missed anyone out as I would like to to keep this list fresh and up-to-date.

I hope you find it helpful and it makes you realise you are really not alone.

Cara x



TIKTOK

TSW-related TikTok accounts


TSW videos on general TikTok accounts 


INSTAGRAM

Started in or before 2013
https://www.instagram.com/tsw_trooper_sg/
https://www.instagram.com/tsw_hojong_freedom_eczema
https://www.instagram.com/eczemaandmelanin/
https://www.instagram.com/eczema.holistic.healing/
https://www.instagram.com/rochellekrichter/
https://www.instagram.com/joshystraw/
https://www.instagram.com/ninabeanuk/
https://www.instagram.com/prettyflakey
https://www.instagram.com/annjidebellis/


Started in 2014
https://www.instagram.com/tsw.bel/
https://www.instagram.com/itchandscratch/
https://www.instagram.com/tswceleste/
https://www.instagram.com/eczemaaproblems/
https://www.instagram.com/tsw_tower/
https://www.instagram.com/mer_mami/
https://www.instagram.com/tswmama/
https://www.instagram.com/tswsurvivor/
https://www.instagram.com/stagey/
https://www.instagram.com/eczema_princess/
https://www.instagram.com/dork.chop/
https://www.instagram.com/neenerss1/
https://www.instagram.com/flakyfabulous/
https://www.instagram.com/tsw_holly/
https://www.instagram.com/sashamichellesmith/
https://www.instagram.com/jodezdonges/

Started in 2015
https://www.instagram.com/tswhenni/
https://www.instagram.com/tswsisters/
https://www.instagram.com/tswstinks/
https://www.instagram.com/tswstephie/
https://www.instagram.com/irishvegantsw/
https://www.instagram.com/tswcam/
https://www.instagram.com/fuxkeczema/
https://www.instagram.com/lucysworld22/
https://www.instagram.com/rachel__tsw/
https://www.instagram.com/thewulfrunner/
https://www.instagram.com/tsw_kiwi/
https://www.instagram.com/eczema_warrior/


Started in 2016
https://www.instagram.com/tsw_aggie_singapore/
https://www.instagram.com/rahul.jani/
https://www.instagram.com/tsw_kabir/
https://www.instagram.com/tsw_appealing.peeling.elaine/
https://www.instagram.com/tswhoney/
https://www.instagram.com/incurablesaph/
https://www.instagram.com/tsw_amirror/
https://www.instagram.com/myskinisaverage/
https://www.instagram.com/tsw_ash/
https://www.instagram.com/tswcal/
https://www.instagram.com/tsw_lisa/
https://www.instagram.com/thatflakylife/
https://www.instagram.com/eczema_steph/
https://www.instagram.com/tswmatild.e/
https://www.instagram.com/tsw_loni/
https://www.instagram.com/pumpkinbutter_reboot/
https://www.instagram.com/tsw_robert/
https://www.instagram.com/healing_imogenellen
https://www.instagram.com/eeczemaatopic/
https://www.instagram.com/littlelucy_eczema_tsw/
https://www.instagram.com/eczemalliarmus/
https://www.instagram.com/tswmrsr/
https://www.instagram.com/wgabspeakingofizz/
https://www.instagram.com/whatspiritsays/
https://www.instagram.com/tswalyss/
https://www.instagram.com/lisabroadbridgefitness/
https://www.instagram.com/12amalka00/
https://www.instagram.com/jenniferlee.boyle/
https://www.instagram.com/sandee_beaches/
https://www.instagram.com/tsw_seandillnutt/
https://www.instagram.com/tofuhippie/
https://www.instagram.com/tsw_marjolein/
https://www.instagram.com/tswjourney89/
https://www.instagram.com/healing__mireya/
https://www.instagram.com/nikitsw/
https://www.instagram.com/tsw_beastmode/
https://www.instagram.com/tsw_kskins/
https://www.instagram.com/beadbead777/


Started in 2017
https://www.instagram.com/laa_two/
https://www.instagram.com/tsw_erick_/
https://www.instagram.com/tswsus/
https://www.instagram.com/tsw_chey_sg/
https://www.instagram.com/helene_tsw/
https://www.instagram.com/health_andheart/ & https://www.instagram.com/tsw_britt/
https://www.instagram.com/mytswjourney.id/
https://www.instagram.com/journeywitheczema/
https://www.instagram.com/tsw_itchycat/
https://www.instagram.com/tsw_jop/
https://www.instagram.com/tsw_toxicfree/
https://www.instagram.com/malitajradwan/
https://www.instagram.com/susancocho/
https://www.instagram.com/derma_healing/
https://www.instagram.com/tswgurl94/
https://www.instagram.com/tswkf/
https://www.instagram.com/tswkash/
https://www.instagram.com/tswjourney/
https://www.instagram.com/tswiona/
https://www.instagram.com/tsw_nital/
https://www.instagram.com/snowinginmay_rss/
https://www.instagram.com/natsurin_tsw/
https://www.instagram.com/why_so_flake/
https://www.instagram.com/tsw_erick/
https://www.instagram.com/tswfrench/
https://www.instagram.com/tsw_unbreakableme/
https://www.instagram.com/tswchristina/
https://www.instagram.com/itsnotmyskin/
https://www.instagram.com/tswmanasa/
https://www.instagram.com/tsw.journey/
https://www.instagram.com/tsw_nicole/
https://www.instagram.com/karolynskin/
https://www.instagram.com/__vashti__/
https://www.instagram.com/oxiuixo/
https://www.instagram.com/tsw_lisayeo/
https://www.instagram.com/lookforme_x/
https://www.instagram.com/lifes_an_itch_/
https://www.instagram.com/eczemamermaid/
https://www.instagram.com/tsw_amelia/
https://www.instagram.com/sweetcaralinn/
https://www.instagram.com/tsw_erichan14/
https://www.instagram.com/noemieblackburn/
https://www.instagram.com/tsw_beezeebuzz/
https://www.instagram.com/tsw_cindy/
https://www.instagram.com/tswpretty/
https://www.instagram.com/lucyvdnbeauty/
https://www.instagram.com/tswjadex/
https://www.instagram.com/lorakeeet/
https://www.instagram.com/tsw_juan/
https://www.instagram.com/leahmargaretb/
https://www.instagram.com/tsw_leo/
https://www.instagram.com/russmcr/
https://www.instagram.com/emmaur/
https://www.instagram.com/hot_mess17/
https://www.instagram.com/chattin_skin/ *Just a FYI that Emma was on methotrexate but has since come off it without any issues.
https://www.instagram.com/tswinthedesert/
https://www.instagram.com/tsw_eczema_life
https://www.instagram.com/codescratch
https://www.instagram.com/tsw_libbeth

Started in 2018
https://www.instagram.com/tsw_lizz/
https://www.instagram.com/tswgabby/
https://www.instagram.com/tsw_lizz/
https://www.instagram.com/tswfernanda.jours/
https://www.instagram.com/alana_tsw/
https://www.instagram.com/tsw_tingting/
https://www.instagram.com/tswviprolabs/
https://www.instagram.com/tsw_healing/
https://www.instagram.com/lifewithouttopicalsteroids/
https://www.instagram.com/tswtav/
https://www.instagram.com/rebecca_rose2120/
https://www.instagram.com/eczestential/
https://www.instagram.com/the_eczema_diaries/
https://www.instagram.com/tsw_fashion/
https://www.instagram.com/mangoandpineapples/
https://www.instagram.com/healed_tsw_dkr/
https://www.instagram.com/sensitiveskinlifestyle/
https://www.instagram.com/tsw_jodie/
https://www.instagram.com/jmd_skin_journey/
https://www.instagram.com/tsw.mari/
https://www.instagram.com/auds_tswjourney_/
https://www.instagram.com/tsw_ori/
https://www.instagram.com/tsw_timo/
https://www.instagram.com/audra.cantrell/
https://www.instagram.com/eczemaprayersandhelp/
https://www.instagram.com/tsw_14/
https://www.instagram.com/tsw_singapore/
https://www.instagram.com/shibamom_tsw/
https://www.instagram.com/tsw_artur/
https://www.instagram.com/tswminyi_/
https://www.instagram.com/tsw_af/
https://www.instagram.com/violet_onedayatatime/
https://www.instagram.com/tsw_so/
https://www.instagram.com/tsw_fall/
https://www.instagram.com/atopic_missy/
https://www.instagram.com/tsw.24/
https://www.instagram.com/tswrana/
https://www.instagram.com/cpltswjourney/
https://www.instagram.com/tsw_ks/
https://www.instagram.com/tsw_simi/
https://www.instagram.com/izzys_healing/
https://www.instagram.com/tsw_ssa/
https://www.instagram.com/tswfet/
https://www.instagram.com/tsw_sophia/
https://www.instagram.com/gemseczemajourney_tsw/
https://www.instagram.com/tsw_vaida/
https://www.instagram.com/tsw_sw/
https://www.instagram.com/emilyrose_tsw/
https://www.instagram.com/eczemarecovery/
https://www.instagram.com/tswsyd/
https://www.instagram.com/tsw_hannah/
https://www.instagram.com/tsw_tarz/
https://www.instagram.com/tsw_erinml/
https://www.instagram.com/healingalina/
https://www.instagram.com/tswsadie/
https://www.instagram.com/tsw_jmc/
https://www.instagram.com/idatsw/
https://www.instagram.com/vicky.tsw/
https://www.instagram.com/atopic_ecz/
https://www.instagram.com/tsw_magali/
https://www.instagram.com/eat_clean_and_heal/
https://www.instagram.com/merrynsadlier_/
https://www.instagram.com/atopic_ecz/
https://www.instagram.com/idatsw/
https://www.instagram.com/tsw_magali/
https://www.instagram.com/itchy_irene/
https://www.instagram.com/msa_tsw/
https://www.instagram.com/tswalexandre/
https://www.instagram.com/tsw_hollybee/
https://www.instagram.com/healinghalks/
https://www.instagram.com/dereecejulius/
https://www.instagram.com/tsw_steph130282/
https://www.instagram.com/tswmegbii/
https://www.instagram.com/tswharriet/
https://www.instagram.com/tsw_margarida/
https://www.instagram.com/dontscratch/
https://www.instagram.com/tsw_ninasstory/
https://www.instagram.com/tswsherah2/
https://www.instagram.com/mxcskindiaries/
https://www.instagram.com/eczema_detox/
https://www.instagram.com/iwillhealintime/
https://www.instagram.com/tsw_jr/
https://www.instagram.com/tswhilary/
https://www.instagram.com/asthetswturns/
https://www.instagram.com/tsw_geghator/
https://www.instagram.com/tsw_littlegirl/
https://www.instagram.com/tsw_wangie/
https://www.instagram.com/anisahxtsw/
https://www.instagram.com/tsw_tingting
https://www.instagram.com/tsw_af/
https://www.instagram.com/tswmatilda
https://www.instagram.com/tsw.alejandro


Started in 2019
https://www.instagram.com/soul.shineee/
https://www.instagram.com/tsw_sabrina/
https://www.instagram.com/atopppii/
https://www.instagram.com/mrs_healing/
https://www.instagram.com/tswandrea/
https://www.instagram.com/jonathan_rivasl_tsw/
https://www.instagram.com/tsw_mama_cat/
https://www.instagram.com/tsw_evaeczema/
https://www.instagram.com/tsw_megs/
https://www.instagram.com/eczema_and_all/
https://www.instagram.com/mari.tsw/
https://www.instagram.com/tswmomo/
https://www.instagram.com/tsw_jyun/
https://www.instagram.com/imaaalice/
https://www.instagram.com/tsw_char/
https://www.instagram.com/rafa.tsw/
https://www.instagram.com/tswjan19/
https://www.instagram.com/ecz_jan/
https://www.instagram.com/tsw_2019from237/
https://www.instagram.com/enlapieldenico/
https://www.instagram.com/tsw.argentina/
https://www.instagram.com/tsw_yoshi/
https://www.instagram.com/itchymicky/
https://www.instagram.com/tswvika/
https://www.instagram.com/eczmacist/
https://www.instagram.com/mae_tswww/
https://www.instagram.com/rf_eczematsw/
https://www.instagram.com/jessicaseczemajourney/
https://www.instagram.com/tsw_holly.p/
https://www.instagram.com/tsw_butterfly/
https://www.instagram.com/tswdarla/
https://www.instagram.com/lm_tswjourney/
https://www.instagram.com/jerico.tsw.warrior/
https://www.instagram.com/itchy_j/
https://www.instagram.com/tswdarla/
https://www.instagram.com/healing.ashley/
https://www.instagram.com/skindeepchloe/
https://www.instagram.com/aleatopica/
https://www.instagram.com/aloeamore/
https://www.instagram.com/theitchy_chi/
https://www.instagram.com/xing_me_tsw/
https://www.instagram.com/healme_tsw/
https://www.instagram.com/cheynewooderson/
https://www.instagram.com/tsw_becca/
https://www.instagram.com/kheesi/
https://www.instagram.com/whatallergy/
https://www.instagram.com/dakakak_tswjourney/
https://www.instagram.com/wonky.ai/
https://www.instagram.com/jess_in.the.raw/
https://www.instagram.com/ashleyignacio/
https://www.instagram.com/ekzema_anet/
https://www.instagram.com/tsfree_derm/
https://www.instagram.com/m_tsw_nmt/
https://www.instagram.com/tsw_alice/
https://www.instagram.com/healinglauraa/
https://www.instagram.com/tsw.nela/
https://www.instagram.com/tsw.rk/
https://www.instagram.com/trueroox/
https://www.instagram.com/tsw_katja/
https://www.instagram.com/tswrozaa/
https://www.instagram.com/nas_tass_ja/
https://www.instagram.com/tsw_jorgie/
https://www.instagram.com/tswava/
https://www.instagram.com/tswkatiek/
https://www.instagram.com/katie.tsw/
https://www.instagram.com/happy_healing_eczema_life/
https://www.instagram.com/harrie.a.v/
https://www.instagram.com/lilyannar/
https://www.instagram.com/fightingthroughtsw/
https://www.instagram.com/tsw_gettingmysmileback/
https://www.instagram.com/tsw_amande/
https://www.instagram.com/tsw_antonia/
https://www.instagram.com/happy_healthy_healing_kez/
https://www.instagram.com/emma_tsw/
https://www.instagram.com/amandine_912019/
https://www.instagram.com/on_a_journey_to_heal/
https://www.instagram.com/jenny_tsw/
https://www.instagram.com/tsw_brian808/
https://www.instagram.com/eczema_skin_diary/
https://www.instagram.com/eczemawarriorkat/
https://www.instagram.com/tsw_brian808/
https://www.instagram.com/itchypaulitsw/
https://www.instagram.com/tsw_chey/
https://www.instagram.com/tsweliis/
https://www.instagram.com/tswmarinefrench/
https://www.instagram.com/terristswskinjourney_/
https://www.instagram.com/haylesea/
https://www.instagram.com/eczema.narrative/
https://www.instagram.com/alohamyskin/
https://www.instagram.com/tsw_mama/
https://www.instagram.com/tswjasmine/
https://www.instagram.com/tsw_lee/
https://www.instagram.com/elletsw/
https://www.instagram.com/tswjasmine/
https://www.instagram.com/itch.please/
https://www.instagram.com/ellaintsw/
https://www.instagram.com/healingneuro/
https://www.instagram.com/liversante_tsw/
https://www.instagram.com/tswvs/
https://www.instagram.com/theharshrealityofeczema/
https://www.instagram.com/tsw.sukyiii/
https://www.instagram.com/tswdailywithhayley/
https://www.instagram.com/tswmarta/
https://www.instagram.com/tsw_sharkskin/
https://www.instagram.com/sa_tsw/
https://www.instagram.com/laurieskinstory/
https://www.instagram.com/rash_tash_fantastic/
https://www.instagram.com/sa_tsw/
https://www.instagram.com/jess_in.the.raw/
https://www.instagram.com/itchymicky/
https://www.instagram.com/tsw_gerald_sg/
https://www.instagram.com/whatismyproblem_/
https://www.instagram.com/tsw_natasya/
https://www.instagram.com/tsw.mb/
https://www.instagram.com/aronnette/
https://www.instagram.com/lukeseczemajourney/
https://www.instagram.com/tsw_tessa.not.tesla/
https://www.instagram.com/tsw_hollie/
https://www.instagram.com/tsw_mich/
https://www.instagram.com/itchy_skin_journey


Started in 2020
https://www.instagram.com/cesca_project30/
https://www.instagram.com/shans_skin/
https://www.instagram.com/the_happyskin
https://www.instagram.com/mily.avh
https://www.instagram.com/seaskyehealing










Using methotrexate
https://www.instagram.com/v.vs.skin/
https://www.instagram.com/tswsteph/
https://www.instagram.com/carla.tsw.life/
https://www.instagram.com/kicking_eczemasbut/

Using cyclosporine
https://www.instagram.com/tsw_chitown/
https://www.instagram.com/kerisredskin/
https://www.instagram.com/drruthskinjourney/ *although she has since stopped using it and has been flaring badly again.
https://www.instagram.com/myfairliza_/
https://www.instagram.com/amys_eczema/
https://www.instagram.com/zoevs.eczema/
https://www.instagram.com/megan_tsw
Using Dupixent
https://www.instagram.com/my_eczema_life/
https://www.instagram.com/eczema.warrior.princess/
https://www.instagram.com/allthings_eczema/
https://www.instagram.com/ecze_dark_times/
https://www.instagram.com/k8loveslife/
https://www.instagram.com/tsw_karrie/
https://www.instagram.com/eczemaqueen97/
https://www.instagram.com/eczemalaydown/
https://www.instagram.com/youngeczemabattler/
https://www.instagram.com/skinyoure1n/
https://www.instagram.com/carefulcomplexion/
https://www.instagram.com/eightiesproof/
https://www.instagram.com/melly_patrick/
https://www.instagram.com/tswmary/
https://www.instagram.com/lingardca/
https://www.instagram.com/tsw_kfasciana/
https://www.instagram.com/ashleyannlora/*even though she has stopped using Dupixent, I thought I would still include her account here as her journey is synonymous with the drug.
https://www.instagram.com/a_skin_thing/
https://www.instagram.com/eczemamadrama/

Eczema accounts
https://www.instagram.com/samsskin/
https://www.instagram.com/adultingwitheczema/
https://www.instagram.com/i_got_eczema_/
https://www.instagram.com/liv.eczema/
https://www.instagram.com/eczema_and_me/
https://www.instagram.com/nothingbuta.itch/
https://www.instagram.com/eczemabirdy/
https://www.instagram.com/vision_of_wellness/
https://www.instagram.com/sieanna.ariel/
https://www.instagram.com/hollyhockhealing/
https://www.instagram.com/xmy_eczema_journeyx/
https://www.instagram.com/itchingforachange/
https://www.instagram.com/jennaben7ga/
https://www.instagram.com/freefromfoods/
https://www.instagram.com/thateczemadad/
https://www.instagram.com/_neuro_blog_/
https://www.instagram.com/eczemastuff/
https://www.instagram.com/___inmyskin/
https://www.instagram.com/sharris31/
https://www.instagram.com/missnsskinlife/
https://www.instagram.com/nvkedskin/
https://www.instagram.com/lana_ijn/
https://www.instagram.com/alicias_eczema_diary/
https://www.instagram.com/slowlyhealingwithkarina/
https://www.instagram.com/eczemawarriorkc/
https://www.instagram.com/miss_positive_bex/
https://www.instagram.com/skinwarriorz/
https://www.instagram.com/emeczema/
https://www.instagram.com/boutsofeczema/
https://www.instagram.com/bethp_skin/
https://www.instagram.com/melissalaurenlee/
https://www.instagram.com/khatyieczemajourney/
https://www.instagram.com/eczemaskinart/
https://www.instagram.com/shas_eczema_journey/
https://www.instagram.com/key_moments87/
https://www.instagram.com/eczema.baby/
https://www.instagram.com/the_eczema_queen/
https://www.instagram.com/healing_my_life/
https://www.instagram.com/diaries.of.a.skin.disorder/
https://www.instagram.com/eczemajourneys/
https://www.instagram.com/kirstxolou/
https://www.instagram.com/eczema_hub/
https://www.instagram.com/itchin87/
https://www.instagram.com/me_vs_eczema/
https://www.instagram.com/jems_life_styled/
https://www.instagram.com/positive.maria/
https://www.instagram.com/little.itch/
https://www.instagram.com/myatopicskin/
https://www.instagram.com/eczefighter/
https://www.instagram.com/eczemamel/
https://www.instagram.com/eczema_journey101/
https://www.instagram.com/beth_eczema/
https://www.instagram.com/chloeandhereczema/
https://www.instagram.com/innerhealthfreak/
https://www.instagram.com/cheekylives/
https://www.instagram.com/vicharchika/
https://www.instagram.com/eczemaphoenix/
https://www.instagram.com/the_allergy_family/
https://www.instagram.com/eczema__journey
https://www.instagram.com/ab3theeczemawarrior


Other accounts
https://www.instagram.com/rupi_kaurtisone *a brilliant parody account inspired by the famous poet @rupikaur_  ...but with TSW.
https://www.instagram.com/itsan.nonprofit/*no explanation needed...
https://www.instagram.com/preventable_doc/*Briana's account for her documentary on TSW, Preventable: Protecting Our Largest Organ (here).
https://www.instagram.com/the_tsw_team *An account dedicated to calling out the steroid misinformation on social media.
https://www.instagram.com/eczema.life/*support and tips for skin conditions from the author of the brilliant book, The Eczema Detox (here).
https://www.instagram.com/the_itch_bitch/*an artist who shares poignant artwork inspired by her skin condition.
https://www.instagram.com/elajnaturally/*a wonderful skincare company that supports TSW. The CEO also wrote an EXCELLENT book titled, Topical Steroid Side Effects: Beyond Eczema and Psoriasis - Understanding Topical Steroid Addiction and Withdrawal (here).
https://www.instagram.com/thehomeherbalistonetsy/*even though this relates to an Etsy account that sells skincare, the founder of the brand created the balms in the first place in order to help her son, Isaiah, through withdrawal. He has since made a full recovery and will sometimes feature on her account. The balm is also popular within the TSW community.
https://www.instagram.com/tsw_witnesses *an account that shares photos of sufferers around the world in order to raise awareness for our condition.
https://www.instagram.com/getyourskinout/*this is not about TSW or eczema per se, but a brilliant account nonetheless created by a psoriasis sufferer who encourages everyone to celebrate the skin they are in.
https://www.instagram.com/cyapsoriasis/*another great psoriasis account.
https://www.instagram.com/eczemaconquerors/*an account run by an holistic nutritionist who has a podcast and website dedicated to the treatment of eczema.
https://www.instagram.com/camilleknowles/*an eczema sufferer-turned author and entrepreneur.
https://www.instagram.com/skin.treats/*an eczema/ex-TSW sufferer who shares skin-friendly beauty products.
https://www.instagram.com/loveyourscalesco/*a brand that creates clothing which encourages us to 'love our imperfections'.
https://www.instagram.com/ecz_andy/*an account by someone who is back on topical steroids.
https://www.instagram.com/bravocado_tsw/*another account by someone who is back on topical steroids.
https://www.instagram.com/cured_of_eczema/*an account featuring other people's journeys to provide hope and support to those currently going through TSW.
https://www.instagram.com/positiveskinproject/*not specifically targeted at those who are going through withdrawal, but an account that spreads awareness for all skin conditions.
https://www.instagram.com/tickle.eczema/*a little skin condition hub of sorts with tips and advice on eczema/TSW etc.
https://www.instagram.com/Atopicdermatitis_hu/*a community page for those living with eczema.
https://www.instagram.com/eczemaandme/*another community page for those living with eczema.
https://www.instagram.com/balmonds_uk/*a very TSW-friendly skincare company.
https://www.instagram.com/tsw.melbourne/ *support group for Melbourne based sufferers set up by a TSW carer.
https://www.instagram.com/internationaltsw *a brand new magazine dedicated to TSW


For Blogs & Websites, click (here).
For Youtube & Facebook, click (here).
For Medical Journals, click (here).
For The Media, click (here).

For Things to Potentially Avoid During TSW, click (here).

For Books Books Books, click (here).

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