TSW. Trichotillomania. Books. Life.

The TSW Database: YouTube & Facebook



I have listed the YouTube videos and channels first followed by all the Facebook pages and groups I could find on TSW, but as always, please let me know if I have missed any and I will happily amend.

Cara x


TSW YouTube Channels

TSW Atlas
In October 2020, Dr Heba Khaled released the video 'An Overview of TSW' which in my opinion is one of the most exciting things to happen to our condition. So far, the channel only has the one video - but trust me when I say that you need to subscribe to it and watch the video immediately. I have been promised that more videos are on their way and I couldn't be more excited.
Serbian translation of the video: https://www.youtube.com/watch?v=YN7BthoX3xk

Josh's Recovery
(https://www.youtube.com/channel/UCfHlmdXVPcm4lG7LgqWh2mw)
Josh's channel helped me so much through my own withdrawal. His videos take you from the first few days of withdrawal through to his eventual recovery. His positive attitude during TSW encouraged me to do the same and I am eternally grateful for his channel. Even better, he let me share his story on my blog (here).

Nina Sloan
(https://www.youtube.com/channel/UCbbb3z6ItXZoge-vGt0d91A)
Nina started withdrawal in 2012 and made a full recovery 8 months later. Her videos were such an inspiration to me throughout my own withdrawal and I was lucky enough to feature her story on my blog (here).

Briana Banos
(https://www.youtube.com/channel/UCGul7qzTlVJ6fOfHKV2ao8A)
Briana started withdrawal in 2015 and documented her battle with her skin through poignant but funny videos. In March 2019, she made the incredible documentary on TSW: Preventable: Protecting our Largest Organ, which is available to watch on her channel.

Laura Stageman
(https://www.youtube.com/channel/UCZdFgsIQii7MgSv-MQ725vw)
Laura started TSW in 2014 and shared a video when she was suffering very badly, then another one 5 months later when she thought she had healed. Since then, she has had a rocky road to recovery but is currently doing well.

Gillian Barbara
(https://www.youtube.com/channel/UCHkTy91jgaCDK77L_GxqHiw)
Gillian started her TSW journey in 2016 and has since made a full recovery. Since recovering, she has posted a few videos about her experience. I have also featured her story on my blog (here).

TSW Steph
(https://www.youtube.com/channel/UCLeIHsBce71HdRnYtYkgi1w)
Steph began her journey with TSW in 2016 and has posted videos documenting her recovery. She is currently using the immunosuppressant methotrexate and is doing well.

Steph Meredith
(https://www.youtube.com/channel/UCfBNisvyrmSnCYd4NPiFRjw)
Another Steph who began her TSW journey on 4th September 2019 then set up her YouTube channel and posted her first video a month later, talking about her experience so far.

James
(https://www.youtube.com/channel/UCy-ymV_bhXLg4FL_cKXvPmg)
James started TSW in late 2013 and has shared a couple of videos about his withdrawal.

Tracy
(https://www.youtube.com/channel/UCAc4CBdemIu5yky4v2CblnA)
Tracy started withdrawal in 2011 and has since made a full recovery, although his channel is many years out of date.

Gary Smith
(https://www.youtube.com/channel/UCsTlVnW6legzNAQ1zMQgTYA)
Gary started withdrawal in 2014 and has since made a full recovery. His videos document him at various stages of withdrawal.

Nina Ajdin
(https://www.youtube.com/channel/UCrQMqNdY201OxxOUstxqmqw)
Nina started withdrawal in 2014 and has had a very tough journey, which she shares openly in her videos. She is currently doing much better. I have also featured her story on my blog (here).

Zip
(https://www.youtube.com/channel/UCJaCj2sXAK0tuBnR9JyYZow)
Zip started TSW in 2015 and has since made a full recovery. He has shared a couple of videos in which he talks about his journey and I have also featured his story on my blog (here).

Brittany Hallberg
(https://www.youtube.com/channel/UCmgaHiCOp_n8qY6ftfdNKKg)
Brittany began her journey with TSW in 2017 and has since made a full recovery. She posts videos about her withdrawal and I have also shared her story on my blog (here).

Mireya P
(https://www.youtube.com/channel/UCHoQPYHraq7NQNZHu8kiufw)
Mireya began her TSW journey in 2016 and has since made a full recovery. In her videos, she discusses her experience.

Zainab
(https://www.youtube.com/user/iambeezee)
Zainab started TSW in 2016 and shares her progress and struggles in some great videos on her channel.

Ashley Lora
(https://www.youtube.com/channel/UCFNohNmaY5H68dnST1GUKmg/videos)
Ashley's channel features videos about her journey with TSW and Dupixent.

Hayley Woolcock
(https://www.youtube.com/channel/UCGv3kS7vYPmaaxj-W70xSCw0)
Hayley began her journey in 2019 and currently has one video up discussing her withdrawal so far.

Topical Steroids vs Us
(https://www.youtube.com/channel/UCzpeVYa1JEGwl2dyf-xu6aw)
The focus of this channel is to raise awareness for the side effects of topical steroids by interviewing others going through topical steroid withdrawal and also offering insight into our condition.

Eden Brown
(https://www.youtube.com/channel/UCv7X-UBzj7l3R7SaqMPuyYQ)
Eden's channel has videos on her journey with TSW, along with some lovely vlogs of living with TSA. 

Santiago Aufranc
Santiago has shared many informative videos about his TSW journey (in Spanish).


Other TSW YouTube channels

Michaela Warne

TReczema
(https://www.youtube.com/channel/UCr6LBvYS5fdHLK5r9fVsffg)

EczemaWarrior
(https://www.youtube.com/channel/UCZ249B5cf5NYxfwYhYFboBA)

SkinMisbehaving
(https://www.youtube.com/channel/UCEZJtUjHvlX7i29pjjiuWwg)

Eczema Phoenix
(https://www.youtube.com/channel/UCAShREuK-bWCZm4g8B8OKOQ)

Eczema Conquerors
(https://www.youtube.com/user/PrimePhysiqNutrition/featured)

Karen Wang
(https://www.youtube.com/channel/UCXPJH2B_vqymBQMub7QDNAA)

Kel Preston
(https://www.youtube.com/channel/UCSff8EOXCu3t7r0AJX3pD2Q/featured)

Top Eczema Treatments
(https://www.youtube.com/channel/UCwYxxHFM_ebv9IV2drgF1oQ/featured)

Aleatopica-English
(https://www.youtube.com/channel/UCFJi4QiTbYlL3gVC5UHvu9Q/featured)

Mel Therese
(https://www.youtube.com/channel/UCHoTsOrepTgVxgQHgqTHSLw/feed)

Paula
(https://www.youtube.com/channel/UC0vkeTgCAbSyJm0EHz5N_Lg)

Mishal Hussain
(https://www.youtube.com/channel/UCWQsFLBjXg7l_xLCxoxKE1w)

Zachary
(https://www.youtube.com/user/MrPteroZactyl)

Danae
(https://www.youtube.com/channel/UCI4ts6039NUtzX9QGwB1WeA)

Sagacious Living
(https://www.youtube.com/channel/UC2qJtoSbXWAsYjPbieuzaLg)

Mel
(https://www.youtube.com/channel/UCHoTsOrepTgVxgQHgqTHSLw/feed)

Tara Cameron
(https://www.youtube.com/channel/UCAF_m4DbieIU_L_9ubhNwkQ/featured)

Playlist on TSW By ReliableRoots
(https://www.youtube.com/playlist?list=PLfbq1ZRuV9U0FZJag3i14mYpOqEpmzHfu)


YouTube videos on TSW

An interview with Dr Rapaport
(https://www.youtube.com/watch?v=8nK0RttPg-U)

Another interview with Dr Rapaport
(https://www.youtube.com/watch?v=0JNVj6eAHDs)

A brilliant video with Dr Lahari on the 'Use of topical steroid & the menace of topical steroid abuse'
(https://www.youtube.com/watch?v=9LZZ1ivBvsM)

A video by Mark Palace, husband of ITSAN founder Kelly Palace, on the dangers of topical steroids
(https://www.youtube.com/watch?v=GhPgNd7n7Sk)

A video by a popular YouTuber, Joana Ceddia, who shared that she has been going through TSW for six months

A brilliant video by Daisy Malin (@daisymalin_skin) via the Truly channel on what it is like living with TSW

A woman who has a fitness channel on YouTube shares that she is currently going through TSW 

Another woman with a fitness channel on YouTube shares her experience through TSW

My Spiritual Enlightenment Story & TSW Experience by Christopher Tan

My TSW Healing Journey by Leila's Eczema
(https://www.youtube.com/watch?v=9jDOET0V1_8&t=25s)

‎A heartbreaking but uplifting video by Kerileanne on her experience so far a year in to TSW and the impact it can have on your life
(https://www.youtube.com/watch?v=qCCNf-5j9OA)

A video of a baby who has been going through TSW for one year 
(https://www.youtube.com/watch?v=O6vrz58sJmM)

Ari Yunda
(https://www.youtube.com/watch?v=DM_POdsGo38)

Kim C

Pixie Parker
(https://www.youtube.com/watch?v=5I5qJ7I81q4)

A woman called Michaela who made a full recovery from TSA shares her top tips for going through withdrawal
(https://www.youtube.com/watch?v=hXkIZ_AWDuE)

Mereani started TSW in 2015 and shares her progress 20 months in
(https://www.youtube.com/watch?v=xo_ZVCP6p70)

A video by BigGuy Journey who spreads awareness for TSW
(https://www.youtube.com/watch?v=Mpv-sABJVMY)

A video by Ken Preston who shares his battle through TSW
(https://www.youtube.com/watch?v=YXhje03xbNw)

A video by a woman who made a full recovery from TSA after 11 months
(https://www.youtube.com/watch?v=4qa8jNgIDMI)

A video featuring children who have been through TSW with voiceovers from their mothers
(https://www.youtube.com/watch?v=Hr5ZbvvfGUc)

A video by a woman called Hannah who shares her journey through TSW and also some exciting news
(https://www.youtube.com/watch?v=nAjAlUBPZRI)

Hannah's music video for All Kinds of Broken with all proceeds from the single going to ITSAN
(https://www.youtube.com/watch?v=CLqTjzsbbOg)

A woman celebrating 2 years of TSW
(https://www.youtube.com/watch?v=ZA6RkG_JhB4)


Facebook Pages

Preventable: Protecting our Largest Organ
https://www.facebook.com/preventabledoc/?eid=ARCp_1mIjcak59Ldp-fJVkYxrpODHT1EhbSmXJ0Ojkl0YtWSyqbIb4uu2XwdSKYNH_w4vEjIclccZ7Jy

Red Skin Syndrome/Topical Steroid Addiction Awareness Facebook page
https://www.facebook.com/redskinsyndrome/?eid=ARA7-8CRAVdpCHHjJvEq8jhHABwX15mmxji51_hqvPwJy3kO8VCQGvaR2V1DY1B-FZA9T_xlX4I_3G2N

Camille Knowles
https://www.facebook.com/camilleknowles/?eid=ARCRIAZ0OD4HjxzCcdTYy3kCJ--mETUlPK_ItTGhDU8q3bW0I75lH8FTkChl748SKwpUqdL5siZxGdQg

The Positive Skin Project
https://www.facebook.com/positiveskinproject/?eid=ARDYgujQT5CzCBNWSYbPyN_1HtZOOkjgv9MLIGNmfYkDnAYf6vi44ZD54LVY-LWwHEKAXW40RbR_M9b_

Peace for Rhys - Eczema Free
https://www.facebook.com/peaceforrhysezcemafree/?eid=ARBoUVvC84ixlYLAudLVvQtLdYiJX7jI7EnMcRv_kr1bhU-rp-QzrYPHvfRdisiMBcjzHivqlO5INXqW

Topical Steroid Addiction
https://www.facebook.com/Topical-Steroid-Addiction-1748398075489608/?eid=ARAkGTI-3LINJhdQocw5GlWEcy-YalUHwdJKRNM4YTePIICcKEtfj0WhRt0GIi1KY_lttR0iGOo2KuFi

The Eczema Company
https://www.facebook.com/theeczemacompany/?eid=ARACPmWjpY_t--6piNocXvUoB48l2iiHg0JlAzF2384Dx55j3BK96kQ23-0q_sv3tptQ6g0gt0JGmOix

Topical Steroid Education
https://www.facebook.com/topicalsteroideducation/?eid=ARC9ScYiEYQOcfAzDIv4zUTZuSfX-Ew2KLe_RCnKSKlwQZmJX9hXcM7kZkIQ2SaFgjHFsPpdIu-hX_mJ

Top Eczema Treatments
https://www.facebook.com/topeczematreatments/?eid=ARBMggHaPXPqogRu4EOsaN9hvWcKqxw_AzOijxJm-z-Bt7_CkyWYJqv4eNkW4Vzu76idUGe2O57ptkHv

Dr. Koushik Lahiri, Dermatologist
https://www.facebook.com/DrLahiriSkinSpecialist/?eid=ARCJwxSmMQt-D-yIPUue-GbF9Y2ToEkhTHLGYLWq5kaE86Z-8KOPjdbuKK4DFPYFHEi2BQPUkbA5sZvZ

No steroid cream on skin without a Dermatologist's prescription
https://www.facebook.com/NoMoreSteroidAbuse/?eid=ARDTUZxGYgojCBqx5W8av1fz3amud5447ORMFflODOzPNT_BtfsW0APBk8UpI4pyqukPJTGt863khB_e

ITSAN Topical Steroid Withdrawal RSS Support
https://www.facebook.com/InternationalTopicalSteroidAddictionNetworkitsan/?eid=ARCeTTUknx2vXq0aeNaDV-vSQkpHATCZmhf85xL-hFxSGGGy2azdoQUBbHgRGBIqy-S6_AofMEVbYgx-

Red Skin Syndrome/Topical Steroid Addiction Awareness
https://www.facebook.com/redskinsyndrome/?eid=ARB5jSPxXpquXcyt-Ajlu35ksje_sIdU7tRzW6UmhMhegZwT8Y7iGIbuDpMOmYnZfVVSuGI9mG9RjjYz

National Eczema Association
https://www.facebook.com/nationaleczema/?eid=ARADe5FwOysOfp8Ows0zGXX56AH4AE3QlLBdFyQASlPFm30ZGWfQZ-B8WhMUW9A953gWavnlkacUqy31

Topical Steroid Withdrawal / Red Skin Syndrome Support
https://www.facebook.com/TSWSupport/?ref=br_rs

MyJourney with Topical Steroid Withdrawal, Red Man Syndrome
https://www.facebook.com/MyJourney-with-Topical-Steroid-Withdrawal-Red-Man-Syndrome-1496138703935950/?ref=br_rs

Evie's Eczema and Topical Steroid Withdrawal Journey
https://www.facebook.com/evieseczemaandtopicalsteroidjourney/?ref=br_rs

Kline's hell of topical steroid withdrawal, red skin syndrome
https://www.facebook.com/KlinesJourneyOnTheGapsDiet/?ref=br_rs

Healing Happens / Topical Steroid Withdrawal / RSS Success Stories
https://www.facebook.com/TSWSuccess/?ref=br_rs

Topical steroid withdrawal prayer and support group
https://www.facebook.com/Topical-steroid-withdrawal-prayer-and-support-group-1894361304142279/?ref=br_rs

NMT for TSW RSS Eczema - topical steroid withdrawal red skin syndrome
https://www.facebook.com/NMT-for-TSW-RSS-Eczema-topical-steroid-withdrawal-red-skin-syndrome-2318846601702706/?ref=br_rs

Topical Steroid Addiction HK
https://www.facebook.com/TopicalSteroidAddictionHK/?ref=br_rs

Steroid Red Skin Syndrome and Skin Remedies
https://www.facebook.com/steroidredskinsyndrome/?ref=br_rs

Dr Marvin Rapaport, MD
https://www.facebook.com/UnderstandingRedSkinSyndrome/?ref=br_rs

Eczema, Red Skin Syndrome, TWS Candida, gut health Support Group
https://www.facebook.com/Eczema-Red-Skin-Syndrome-TWS-Candida-gut-health-Support-Group-1266315446723423/?ref=br_rs

Steroid Red Skin Syndrome and Skin Remedies
https://www.facebook.com/steroidredskinsyndrome/?ref=br_rs


Facebook Groups

- Topical Steroid Withdrawal-Red Skin Syndrome Support Group
- Eczema & Topical Steroid Withdrawal for WOMEN-Healing Through Positivity
- ITSAN Topical Steroid Withdrawal Syndrome Support Group
- TSW London Network
- Eczema and Topical Steroid Addiction Awareness (TSA) Group
- Skin Support and Wellness Community (Eczema, Psoriasis, Acne etc)
- Healing Happens / Topical Steroid Withdrawal / RSS Success Stories
- Eczema Evolution & Topical Steroid Withdrawal
- Topical Steroid Withdrawal / TSA / RSS – an alternative (AR)
- New and Expecting Mothers going through Topical Steroid Withdrawal
- Healing Topical Steroid Withdrawal/RSS with Scientific Approach
- Topical Steroid Withdrawal/Red Skin Syndrome Support & Awareness
- Dating/Singles - Eczema/Topical Steroid Withdrawal
- Stop Topical Steroids. Start HEALING.
- Topical Steroid Withdrawal Foundation
- Topical Steroid Withdrawal Recovery - The Red-Faced Warriors Unite!
- Topical Steroid Withdrawal Babies and Kids
- Topical Steroid Withdrawal Australia Group
- IMIA-TSW Informed Moms In Action-Topical Steroid Withdrawal
- Protopic/Elidel Withdrawal Support Group
- Eczema Parents - Topical Steroid Awareness Group
- steroid induced dermal atrophy and tsw (male group)
- Singapore Topical Steroid Withdrawal / Red Skin Syndrome Support Group
- Shared Successes for Topical Steroid Withdrawal (TSW)
- Red Light Therapy & Topical Steroid Withdrawal
- Topical Steroid Withdrawal Hawaii
- Topical Steroid Withdrawal- Red Skin Syndrom (TSW/RSS) - US & military Fam
- Blayne's Fight Against Red Skin Syndrome (topical steroid addiction )
- TOPICAL STEROID WITHDRAWAL. GRUPO DE APOYO EN ESPAÑOL.
- NAAE - Skin Education (including TSA/TSW)
- Topical Steroid Withdrawal- Partner/Caregiver Support Group
- eczema & topical steroid withdrawal-red skin syndrome support group
- Red Skin Syndrome/ Topical Steroid Withdrawal Support Group
- Topical steroids withdrawal Support Group
- Eczema, Red Skin Syndrome, TSW and other skin conditions awareness group
- Parents of Children with Chronic Eczema & Skin Issues Support Group
- My journey with Red Skin Syndrome (RSS, TSA & TSW)
- Singapore Topical Steroid Withdrawal / Red Skin Syndrome Support Group
- RED SKIN SYNDROME CZ/SK
- Psoriasis, Eczema & other Skin Problems Philippines Support Group
- eczema & topical steroid withdrawal-red skin syndrome support group
- Red Skin Syndrome/ Topical Steroid Withdrawal Support Group
- é¡žå›ºé†‡ä¸Šç™®(香港) - Topical.Steroid.Addiction.HK
- IMIA-TSW Informed Moms In Action-Topical Steroid Withdrawal
- LDN for TSW - Safe Healing Therapies
- Using Oral Immunosuppressants in TSW Support Group
- Long Term TSW Warriors
- TSA Caregivers rock!
- The NMT Healed Club (No Moisturizing Treatment)
- Parents of Children with Chronic Eczema & Skin Issues Support Group
- Parents of Children suffering with eczema
- Support group for NMT - TSW
- TSW, TSA, RSS - Szteroidelvonás, SzteroidfüggÅ‘ség, Vörös bÅ‘r szindróma


For Blogs & Websites, click (here).
For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).
For The Media, click (here).
For Things to Potentially Avoid During TSW (here).

The TSW Database: Blogs & Websites



I have already shared some of the websites and blogs in a previous post (here), but I have elaborated on the original list to include every single website and blog I could find on our condition ... but do let me know if I have missed any!

Cara x


Websites

ITSAN
(ITSAN.org)
Safe to say this is pretty much the mothership for our condition.

Preventable
(https://preventabledoc.com)
The website for the BRILLIANT documentary on topical steroid addiction, Preventable: Protecting Our Largest Organ.

Dr. Marvin Rapaport
(www.red-skin-syndrome.com)
I like to call him the godfather of TSW. 

Dr. Fukaya
(www.mototsugufukaya.blogspot.co.uk)
Another godfather (doctor) of TSW who wants to spread awareness for our condition.

The Home Herbalist
(https://www.etsy.com/shop/thehomeherbalist/)
An Etsy shop run by a woman called Stephanie who created balms for her son, Isaiah, who went through topical steroid withdrawal. He has since made a full recovery and her balms prove to be popular within the TSW community. 

Eczema Conquerors
(https://www.eczemaconquerors.com)
The website for a holistic nutritionist who overcame severe eczema and now helps others do the same.


Blogs on TSW that helped me through my own withdrawal

Jake & Libby's blog
(http://eczemahealing.blogspot.co.uk/)
Jake started withdrawal in 2012, and with the help of his girlfriend, Libby, made a full recovery in 2013. This was the first blog I ever found on TSW, and the first one to give me hope that I would get better.

Josh's blog 
(http://redskinrecoverydiary.blogspot.com)
Josh is an Australian guy who started TSW in 2012 and one of my all-time favourites. His laid-back attitude and positivity was exactly what I needed and made me want to be the same.

A Little Itchy's blog 
(http://alittleitchy.blogspot.co.uk)
This blog hasn't got much content on it but makes up for that with one fabulous transformation story. The picture of her 'healed' hands was bookmarked on my laptop and I would look at them every day to get through.

Juliana's blog 
(https://antisteroid.wordpress.com/)
Juliana is the true embodiment of a skin warrior. She's had a very long and tough withdrawal and her blog helped me so much through my own journey.


Some new finds ...

Isaiah Quinn (whose story I have featured on my blog *here*)
(https://isaiahquinn.blogspot.com)
Isaiah started withdrawal in 2013 as a baby and made a full recovery after 2 years.

My Baby Eczema
This is Lulu's website about her baby who went through topical steroid withdrawal and recovered after a year and a half.

Gary Smith
(http://garysmith333.blogspot.com)
Gary started TSW in 2014 and after a long 4+ year battle, has made a full recovery.

Topical Steroid Withdrawal // Red Skin Syndrome
(https://tsweczema.wordpress.com)
A woman who started withdrawal in 2012 and after 3 years, made a full recovery.

My Journey with Red Skin Syndrome
(https://journey-to-comfort-and-health.tumblr.com)
A woman who went through withdrawal in 2012 and made a full recovery after two years.

Itchy Lynd's Blog
(https://itchylynds82.wordpress.com)
Lyndsey started TSW in 2015 and even though she hasn't updated this blog in quite some time, she made a full recovery this year (2019) and looks absolutely amazing. For more information, visit her Instagram account @lyndsey_tsw.

TSW Healing Journey
A blog written by the mother of a little boy going through TSW. He is now three years TSW and doing so well. 

Topical Steroid Healing
A blog written by a mother called Jolene whose son is currently going through TSW. She set it up to provide information and raise awareness for our 'preventable' condition.

Eczemacism (whose story I have featured on my blog *here*)
(https://eczemacism.wordpress.com)
Nick started withdrawal in 2015 and has since made a full recovery.

Santiago's Blog
Santiago has put together a really informative blog on his journey through TSW, with lots of links to the things which helped him.

Scratchy Monster 
(http://scratchymonster.blogspot.com)
Set up by a mother whose daughter went through TSW in 2012 and made a full recovery around a year later.

Stopping Topical Steroids
(http://stoppingtopicalsteroids.blogspot.com)
Tracey started her journey with TSW in 2013 and has since made a full recovery.

Withdrawal of Steroid Creams
(http://withdrawalofsteroidcreams.blogspot.com)
Megs started TSW in October 2012 and made a full recovery nearly 3 years later.

Jessica Morrison
(http://www.jessicacasner.com/blog)
Jessica started TSW in 2016 and is close to making a full recovery.

Dave's Topical Steroid Withdrawal
(http://davestsw.blogspot.com)
Dave started TSW in 2013 and has just celebrated his 6 year anniversary and believes he is close to making a full recovery.

A Steroid Free Life
(http://asteroidfreelife.blogspot.com)
Vee started withdrawal in 2013 and as of 2016 (her last post) believes she is TSW free.

laleizel
(https://laleizel.wordpress.com)
Leizel went through withdrawal in 2016 and made a full recovery after a year but still suffers from various skin issues.

It's Not Eczema
(http://www.itsnoteczema.com/blog/topical-steroid-withdrawal)
A blog set up after recovering from TSW, Senovia started going through withdrawal in 2012 and it took approx 4 years for her to make a full recovery.

Eden's Skin
(http://edenskin.blogspot.com)
Written by Eden's mother, Eden started TSW in 2013 and made a full recovery a few years later. The blog is updated occasionally and Eden still appears to be doing well with only patches of mild eczema.

Our Itchy Boy
(http://ouritchyboy.blogspot.com)
Written by the mother of a child who went through TSW from July 2015 to approximately September 2017.

Balmonds
(https://balmonds.co.uk/blogs/blog/tagged/topical-steroid-withdrawal)
Blog for the skincare brand that features articles from members of the TSW and skin community.

Karen Wang
(https://www.karenkwang.com/pct-blog)
Karen started TSW in 2018 and has documented her journey through withdrawal on her blog.

My Poisoned Skin
(https://mypoisonedskin.wordpress.com)
Julie started TSW in 2016 but stopped updating the blog at month 15, although at the time she appeared to be doing well.

Eczema Struggles
(https://improvingeczema.wordpress.com)
A woman who started TSW at the end of 2012 and made a full recovery in 2014. At the time of her last post in 2014, she only had very mild eczema.

The Big Itch
(http://thebigitch13.blogspot.com)
A man who began his journey with TSW in 2012 and stopped blogging in 2014 around 17 months in, but at the time appeared to be doing well.

Elizabeth's Site
(https://elizabethssite.wordpress.com)
Elizabeth started withdrawal in 2012 and after 21 months, was still suffering badly. Unfortunately she stopped blogging at that point but I hope she is doing better now.

My Journey Through Topical Steroid Withdrawal
(https://myeczemajourneyuk.wordpress.com)
One woman's journey through TSW with many ups and downs along the way. Her last post was in 2017, at which point she was doing much better and learning to embrace her skin and accept any flares in the future.

Stopping Steroids
(http://stoppingsteroids.blogspot.com)
Another TSW blog. Unfortunately the author, Kary, has not blogged since 2017.

A Scratchy Little Girl in an Itchy Little World
(http://eczemajourney.weebly.com)
Mel started withdrawal in November 2014 and by month 17, appeared to be doing well. She stopped blogging but now runs the website, https://topeczematreatments.com.

Getting my Smile Back
(https://gettingmysmilebacktsw.home.blog)
Helen started her journey with TSW during the summer of 2019 so there are only a few posts on it for now.

The TSW Diaries 
(https://thetswdiaries.wordpress.com)
Pace started TSW in November 2016 and is currently doing better but still has a little way to go.

The Chronicles of Melly
(https://thechroniclesofmelly.wordpress.com)
Documenting Melly's journey with eczema. She is currently taking Dupixent and thriving.

My Topical Steroid Withdrawal Journey
(http://thethickskin.blogspot.com)
Sarah has been going through withdrawal for over five years but is currently using the immunosuppressant methotrexate and is doing well.

MLKA
(https://aurasandlightwork.com)
Michaela's journey with TSW and Colitis.

Eczema Illusion
(http://eczemaillusion.blogspot.com)
A woman who started TSW in 2012 and in her last post in 2014 was doing better but still had a little way to go.

Going Natural Mum
(https://goingnaturalmum.wordpress.com)
A blog written from February to July 2013 by a mother looking for a cure for her daughter's eczema and her journey to be steroid free.

boy vs self
(https://boyvself.wordpress.com)
A blog by K, documenting their journey through TSW from May to June 2013.

Eczema Journey
(https://eczemajourney.wordpress.com)
Steph started her journey with TSW in December 2012, but as of her last post in February 2016, appears to be using topical steroids again sparingly.

Eczema Excellence 
(https://eczemaexcellence.wordpress.com)
A woman who started TSW in 2013 and still appears to be dealing with skin issues and some food intolerances.

Eczemancipated
(https://eczemancipated.wordpress.com)
HP started TSW in 2012 and as of her last post in 2016, appeared to getting there but was still battling symptoms of TSA.

TSWbeatdown
(https://tswbeatdown.wordpress.com)
Chi started withdrawal in 2014 and as of 2017/2018, was doing much better, although still experiencing occasional flares.

I Have Eczema
(http://i-have-eczema.blogspot.com)
As of 2017, Jenny was four years into TSW but also taking ciclosporin. At the time of her last post, she said she was doing well and hoping to use Dupixent in the future.

Hayley's Journey Through Topical Steroid Withdrawal
(http://an-itch-in-time.blogspot.com)
Hayley started TSW in 2015 and as of her last post in 2018, was doing well but still suffered from sensitive/irritated skin.

Say No To Topical Steroids
(https://saynototopicalsteroids.wordpress.com)
Set up by a woman called Leslie, I am a little unsure of her start date, and even though it was updated pretty regularly in 2013, there have been no posts since 2014.

Nonscents at No. 10
(http://nonscentsatno10.co.uk)
Jemma is a lifestyle blogger who started TSW in 2019 and blogs about her skin journey and allergies.

Itchy, Red and Miserable!
(https://itchyred.blogspot.com)
JT started TSW in 2012. He is currently using Dupixent and doing well.

Kline's Topical Steroid Hell
(http://klinestopicalsteroidhell.blogspot.com)
A child who has been battling TSW for over six years. He is getting there, but it's been a very long road to recovery.

My Journey to Healthy Skin
(http://steroidfreeskin.blogspot.com)
Megan started her journey with TSW in 2013 and after a period in 2016 of 'healed' skin, started flaring again. She hasn't posted since her last flareup in 2016.

Zombie B Gone
(https://zombiebegone.wordpress.com)
A woman who started withdrawal in (I think) 2014 but unfortunately in 2017, started using topical steroids again.

My Little Red Warrior
(https://mylittleredwarrior.wordpress.com)
Written by a mother whose daughter went through TSW from 2013. The blog was only updated for a year, at which point she was doing better. 

Ruby Red Heals Steroid Induced Eczema
(https://rubyredandtsw.wordpress.com)
Ruby started TSW in 2013 and after two years, began using the immunosuppressant ciclosporin.

Skin of Rose
(https://skinofrose.blogspot.com)
Tommy set up her blog in 2011 to document her battle with TSW and as of her last post in 2016, appeared to be doing better.

Just Dupree
(https://www.justdupree.com/blog/topical-steroid-withdrawal)
Dupree documents her skin journey, having previously tried the Dr Aron method, amongst other things, and a failed attempt at TSW. She is currently making her second attempt to go through TSW which she began in early 2019.

Buffalo Alex
(https://buffaloalex.wordpress.com)
Alex began his journey with TSW in 2015 but only updated his blog up to month 3.

I Hate Steroids
(http://ihatesteroids.blogspot.com)
Only two posts on this blog from 2013 set up by a mother whose child, Joe, was going through TSW.

35 Years of Hell
(http://35yearsofhell.blogspot.com)
Siegfried started TSW at the end of 2013, but only blogged till week 3.

In My Skin
(http://inmyskin.uk)
Stuart started TSW in 2017 and has been making improvements year by year. His blog documents his skin journey.


Posts on non-TSW blogs

A fabulous lifestyle blog by my namesake, Cara, who has written about her journey with TSW
https://sweetcaralinn.com/index.php/2018/09/01/16-months-into-topical-steroid-withdrawal/

A blog post written by a mother who watched her daughter go through TSW
https://www.barenuhcessities.com/blogs/good-reads/in-the-battle-ring-with-topical-steroid-withdrawal-tsw

A blog post written by the lovely Jennifer who started topical steroid withdrawal in 2016
https://jenboylestudio.com/one-year-anniversary-topical-steroid-withdrawal/

A blog post featuring the fabulous @tsw_beezeebuzz
https://www.honestyforyourskin.co.uk/red-skin-syndrome-topical-steroid-withdrawal/

A blog post featuring the brilliant @tswsurvivor
https://www.thefunctionalnurse.blog/skin-care/2019/2/17/topical-steroid-withdrawal

A blog post featured on a fermented food website that was written by its founder who also suffered from TSA
https://www.fermentedbylab.com/blog/2018/7/18/three-years-on-how-i-manage-my-eczema

A blog post on topical steroid withdrawal featuring Mel from Top Eczema Treatments
https://itchylittleworld.com/top-eczema-treatments-from-itchy-to-inspired/

A blog post about TSW titled 'The TSW Debate', drawing passages from medical papers etc.
https://www.eczemalife.com/blogs/tsw/tsw-research

A blog post about 4-year-old Cosette's journey through TSW

For Youtube & Facebook, click (here).

For TikTok & Instagram accounts, click (here).
For Medical Journals, click (here).
For The Media, click (here).

For Things to Potentially Avoid During TSW, click (here).

For Books Books Books, click (here).

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